Bennett Louise, Bergin Michael, Gooney Martina, Doherty Colin P, Synnott Cara, Wells John S G
Department of Nursing, School of Health Sciences, Cork Road, Waterford Institute of Technology, Waterford, Ireland.
Department of Nursing, School of Health Sciences, Cork Road, Waterford Institute of Technology, Ireland.
Epilepsy Res. 2015 Jul;113:11-8. doi: 10.1016/j.eplepsyres.2015.03.006. Epub 2015 Mar 20.
A challenge facing modern health care systems is to develop and implement new models of service that deliver increased capacity while providing a higher-quality, more cost-effective service within resource constraints. Incorporating the experience of people with epilepsy must be seen as central to the effectiveness of service design and delivery. This paper, therefore, reports the views of people with epilepsy with regards to health service delivery in Ireland.
A cross-sectional descriptive survey design involving both quantitative and qualitative items was administered to a convenience sample of one hundred and two people with epilepsy (n=102) attending an epilepsy specialist centre.
Despite high levels of satisfaction with hospital and primary care, participants offered several suggestions to improve healthcare delivery, such as: less delay in accessing specialist care and hospital appointments; better communication; and easier access to investigatory services. Findings demonstrate that for people with epilepsy the burden of the disorder is substantial and complex encompassing social, psychological and structural difficulties. Poor information provision particularly among women is reported. Furthermore, a lack of empowerment in people with epilepsy is highlighted.
This study has implications for the reform and development of epilepsy services in relation to practice, education and research. It provides a basis for an evaluation of current practice and identifies opportunities for future service reorganization to improve the quality and efficiency of healthcare provision.
现代医疗保健系统面临的一项挑战是开发并实施新的服务模式，在资源受限的情况下提高服务能力，同时提供更高质量、更具成本效益的服务。将癫痫患者的经验纳入其中，对于服务设计和提供的有效性至关重要。因此，本文报告了爱尔兰癫痫患者对医疗服务提供的看法。
对前往癫痫专科中心就诊的102名癫痫患者（n = 102）的便利样本进行了一项包含定量和定性项目的横断面描述性调查。
尽管对医院和初级保健的满意度较高，但参与者提出了一些改善医疗服务提供的建议，例如：减少获得专科护理和医院预约的延迟；改善沟通；更便捷地获得检查服务。研究结果表明，对于癫痫患者来说，该疾病的负担巨大且复杂，包括社会、心理和结构方面的困难。据报告，信息提供不足，尤其是在女性中。此外，癫痫患者缺乏自主权也得到了强调。
本研究对癫痫服务在实践、教育和研究方面的改革与发展具有启示意义。它为评估当前实践提供了基础，并确定了未来服务重组的机会，以提高医疗保健提供的质量和效率。
