Bennett Louise, Bergin Michael, Wells John S G
Department of Nursing, School of Health Sciences, Cork Road, Waterford Institute of Technology, Waterford, Ireland.
Department of Applied Arts, School of Humanities, Waterford Institute of Technology, Waterford, Ireland.
J Patient Exp. 2020 Dec;7(6):1189-1196. doi: 10.1177/2374373520948405. Epub 2020 Aug 13.
Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients' negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement.
赋权是患者中心实践不可或缺的一部分，尤其对于慢性病患者而言，尽管在实际操作中，人们对这一背景下的赋权理解不足。因此，慢性病患者所体验到的赋权需要进行探索。本文报告了爱尔兰一家专科癫痫服务机构中患者的赋权体验，以此作为影响慢性病患者赋权的更广泛问题的一个范例。采用框架法对爱尔兰一家癫痫服务机构的10名患者进行了深度访谈。通过对服务提供情况的非参与性观察进一步完善了分析。结果表明，患者在赋权方面的负面体验似乎源于与临床医生-患者权力维度相关的传统社会规范，以及临床医生在无意识层面内化的社会耻辱感。考虑到这一点，基于批判社会理论的教育方法可能提供一个框架和指导，使服务机构能够应对这些问题，并在治疗过程中接受对慢性病患者的赋权。
