Suppr超能文献

从患者角度探索爱尔兰一家专科癫痫服务机构中的赋权维度。

Exploring Dimensions of Empowerment from the Patients' Perspective in One Specialist Epilepsy Service in Ireland.

作者信息

Bennett Louise, Bergin Michael, Wells John S G

机构信息

Department of Nursing, School of Health Sciences, Cork Road, Waterford Institute of Technology, Waterford, Ireland.

Department of Applied Arts, School of Humanities, Waterford Institute of Technology, Waterford, Ireland.

出版信息

J Patient Exp. 2020 Dec;7(6):1189-1196. doi: 10.1177/2374373520948405. Epub 2020 Aug 13.

Abstract

Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients' negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement.

摘要

赋权是患者中心实践不可或缺的一部分,尤其对于慢性病患者而言,尽管在实际操作中,人们对这一背景下的赋权理解不足。因此,慢性病患者所体验到的赋权需要进行探索。本文报告了爱尔兰一家专科癫痫服务机构中患者的赋权体验,以此作为影响慢性病患者赋权的更广泛问题的一个范例。采用框架法对爱尔兰一家癫痫服务机构的10名患者进行了深度访谈。通过对服务提供情况的非参与性观察进一步完善了分析。结果表明,患者在赋权方面的负面体验似乎源于与临床医生-患者权力维度相关的传统社会规范,以及临床医生在无意识层面内化的社会耻辱感。考虑到这一点,基于批判社会理论的教育方法可能提供一个框架和指导,使服务机构能够应对这些问题,并在治疗过程中接受对慢性病患者的赋权。

相似文献

5
The potential of critical social theory as an educational framework for people with epilepsy.
Epilepsy Behav. 2016 Jan;54:80-7. doi: 10.1016/j.yebeh.2015.10.029. Epub 2015 Dec 10.
7
Critical Care Network in the State of Qatar.卡塔尔国重症监护网络。
Qatar Med J. 2019 Nov 7;2019(2):2. doi: 10.5339/qmj.2019.qccc.2. eCollection 2019.

本文引用的文献

2
The potential of critical social theory as an educational framework for people with epilepsy.
Epilepsy Behav. 2016 Jan;54:80-7. doi: 10.1016/j.yebeh.2015.10.029. Epub 2015 Dec 10.
5
Evidence-based models of care for people with epilepsy.基于证据的癫痫患者护理模式。
Epilepsy Behav. 2012 Jan;23(1):1-6. doi: 10.1016/j.yebeh.2011.10.019. Epub 2011 Nov 30.
7
Determinants of quality of life in people with epilepsy.癫痫患者生活质量的决定因素。
Neurol Clin. 2009 Nov;27(4):843-863. doi: 10.1016/j.ncl.2009.06.003.
9
Patient empowerment in theory and practice: polysemy or cacophony?患者赋权的理论与实践:一词多义还是声音嘈杂?
Patient Educ Couns. 2007 Apr;66(1):13-20. doi: 10.1016/j.pec.2006.09.008. Epub 2006 Nov 2.
10
Patient empowerment in intensive care--an interview study.重症监护中的患者赋权——一项访谈研究。
Intensive Crit Care Nurs. 2006 Dec;22(6):370-7. doi: 10.1016/j.iccn.2006.05.003. Epub 2006 Aug 4.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验