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“我能把他交给谁?这难题得由我来解决”:南非开普敦癫痫患者照料者所经历的社会心理困境

'Whom will I give him to? The difficulty is mine' : Psychosocial difficulties experienced by care givers of patients with epilepsy in Cape Town, South Africa.

作者信息

Keikelame Mpoe Johannah, Swartz Leslie

机构信息

1 University of Cape Town, South Africa.

2 Stellenbosch University, South Africa.

出版信息

J Health Psychol. 2016 Nov;21(11):2550-2561. doi: 10.1177/1359105315581065. Epub 2016 Jul 10.

Abstract

Epilepsy has been reported as one condition that can cause psychological difficulties and distress to care givers of patients suffering from the condition. This study explored psychological difficulties experienced by lay care givers of patients with epilepsy in an urban township in South Africa. Nine individual in-depth interviews were conducted with lay carers who provide care to their relatives, friends and neighbours who have epilepsy. A thematic data analysis method was used. Some fears, social concerns and worries affecting care giving were reported. Community interventions that promote cultural sensitivity in mental health care and empowerment of these carers are needed.

摘要

据报道,癫痫是一种会给癫痫患者的护理人员带来心理困扰和痛苦的疾病。本研究探讨了南非一个城市乡镇中癫痫患者的非专业护理人员所经历的心理困扰。对那些为患有癫痫的亲属、朋友和邻居提供护理的非专业护理人员进行了9次个人深度访谈。采用了主题数据分析方法。报告了一些影响护理工作的恐惧、社会担忧和顾虑。需要开展社区干预措施,以提高精神卫生保健中的文化敏感性并增强这些护理人员的能力。

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