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“一个充满故事的事物”:传统治疗师对癫痫的解释以及在开普敦与生物医学医疗合作的观点

'A thing full of stories': Traditional healers' explanations of epilepsy and perspectives on collaboration with biomedical health care in Cape Town.

作者信息

Keikelame Mpoe Johannah, Swartz Leslie

机构信息

University of Cape Town and Stellenbosch University

Stellenbosch University.

出版信息

Transcult Psychiatry. 2015 Oct;52(5):659-80. doi: 10.1177/1363461515571626. Epub 2015 Feb 13.

Abstract

The experience of epilepsy is profoundly culturally mediated and the meanings attributed to the condition can have a great impact on its social course. This qualitative study used Kleinman's Explanatory Model framework to explore traditional healers' perspectives on epilepsy in an urban township in Cape Town, South Africa. The healers who participated in the study were Xhosa-speaking, had experience caring for patients with epilepsy, and had not received any training on epilepsy. Six individual in-depth interviews and one focus group with nine traditional healers were conducted using a semi-structured interview guide. Traditional healers identified several different names referring to epilepsy. They explained epilepsy as a thing inside the body which is recognized by the way it presents itself during an epileptic seizure. According to these healers, epilepsy is difficult to understand because it is not easily detectable. Their biomedical explanations of the cause of epilepsy included, among others, lack of immunizations, child asphyxia, heredity, traumatic birth injuries and dehydration. These healers believed that epilepsy could be caused by amafufunyana (evil spirits) and that biomedical doctors could not treat the supernatural causes of epilepsy. However, the healers believed that western medicines, as well as traditional medicines, could be effective in treating the epileptic seizures. Traditional healers were supportive of collaboration with western-trained practitioners and highlighted that the strategy must have formal agreements in view of protection of intellectual property, accountability and respect of their indigenous knowledge. The findings suggest a need for interventions that promote cultural literacy among mental health practitioners. Research is urgently needed to assess the impact of such collaborations between biomedical services and traditional healers on epilepsy treatment and care.

摘要

癫痫的体验在很大程度上受到文化的影响,赋予这种疾病的意义会对其社会进程产生重大影响。这项定性研究使用克莱曼的解释模型框架,探讨了南非开普敦一个城市乡镇的传统治疗师对癫痫的看法。参与研究的治疗师以科萨语为母语,有照顾癫痫患者的经验,且未接受过任何癫痫方面的培训。使用半结构化访谈指南,对六位传统治疗师进行了个人深度访谈,并与九位传统治疗师进行了一次焦点小组访谈。传统治疗师确定了几个指代癫痫的不同名称。他们将癫痫解释为身体内部的一种东西,可通过癫痫发作时的表现方式识别出来。据这些治疗师称,癫痫难以理解,因为它不容易被察觉。他们对癫痫病因的生物医学解释包括未接种疫苗、儿童窒息、遗传、分娩创伤和脱水等。这些治疗师认为癫痫可能由阿马富富尼亚纳(邪灵)引起,生物医学医生无法治疗癫痫的超自然病因。然而,治疗师们认为西药和传统药物都能有效治疗癫痫发作。传统治疗师支持与接受西方培训的从业者合作,并强调鉴于知识产权保护、问责制以及对其本土知识的尊重,该策略必须有正式协议。研究结果表明需要采取干预措施来提高心理健康从业者的文化素养。迫切需要开展研究,以评估生物医学服务与传统治疗师之间的这种合作对癫痫治疗和护理的影响。

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