Wang Jing, Xiao Lily Dongxia, Li Xiaomei, De Bellis Anita, Ullah Shahid
Faculty of Nursing, Health Science Center, Xi'an Jiaotong University, No. 76 Yanta West Road, Xi'an City, Shaanxi Province 710061, China; School of Nursing and Midwifery, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia.
School of Nursing and Midwifery, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia.
Geriatr Nurs. 2015 Sep-Oct;36(5):348-54. doi: 10.1016/j.gerinurse.2015.04.013. Epub 2015 May 23.
The aim of this study was to investigate caregiver distress in reacting to the care recipient's behavioral and psychological symptoms of dementia (BPSD) and factors contributing to caregiver distress in the community setting in China. One hundred and fifty-two family caregivers of people with dementia in community settings were assessed using the Chinese version of the Neuropsychiatric Inventory-Questionnaire and the Social Support Rating Scale. The prevalence of BPSD and caregiver distress in reacting to BPSD was higher in China than those reported in high income countries. The most common individual BPSD were apathy/indifference, depression/dysphoria and night-time behaviors. Delusions, hallucinations and apathy/indifference were rated as the most distressing to caregivers. BPSD contributed most to caregiver distress. The high level of caregiver distress identified in this study suggests that dementia services and caregiver support should be established in the public healthcare system to target the needs of people with dementia and their caregivers.
本研究旨在调查中国社区环境中照顾者在应对痴呆症患者的行为和心理症状（BPSD）时的困扰，以及导致照顾者困扰的因素。使用中文版的神经精神科问卷和社会支持评定量表对152名社区痴呆症患者的家庭照顾者进行了评估。中国BPSD的患病率以及照顾者对BPSD的反应困扰高于高收入国家报告的水平。最常见的个体BPSD是冷漠/无动于衷、抑郁/烦躁不安和夜间行为。妄想、幻觉和冷漠/无动于衷被评为对照顾者最困扰的症状。BPSD对照顾者困扰的影响最大。本研究中确定的照顾者高度困扰表明，应在公共医疗系统中建立针对痴呆症患者及其照顾者需求的痴呆症服务和照顾者支持体系。
