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家庭肠内营养(HEN);NADYA-SENPE小组西班牙登记处;2013年

A home enteral nutrition (HEN); spanish registry of NADYA-SENPE group; for the year 2013.

作者信息

Wanden-Berghe Carmina, Álvarez Hernández Julia, Burgos Peláez Rosa, Cuerda Compes Cristina, Matía Martín Pilar, Luengo Pérez Luis Miguel, Gómez Candela Carmen, Pérez de la Cruz Antonio, Calleja Fernández Alicia, Martínez Olmos Miguel Ángel, Laborda González Lucía, Campos Martín Cristina, Leyes García Pere, Irles Rocamora José Antonio, Suárez Llanos José Pablo, Cardona Pera Daniel, Gonzalo Marín Monserrat, Penacho Lázaro María Ángeles, Ballesta Sáncez Carmen, Rabasa Soler Antoni, Garde Orbaiz Carmen, Cánovas Gaillemin Bárbara, Moreno Villares José Manuel, del Olmo García María Dolores, Carabaña Pérez Fátima, Arraiza Irigoyen Carmen, Mauri Silvia, Sánchez-Vilar Burdiel Olga, Virgili Casas Nuria, Miserachs Aranda Nuria, Apezetxea Celaya Antxón, Pereira Soto Manuel Ángel, Ponce González Miguel Ángel

机构信息

Hospital General Universitario de Alicante. Universidad Miguel Hernández..

Hospital Príncipe de Asturias. Alcalá de Henares, Madrid..

出版信息

Nutr Hosp. 2015 Jun 1;31(6):2518-22. doi: 10.3305/nh.2015.31.6.8983.

DOI:
10.3305/nh.2015.31.6.8983
PMID:26040360
Abstract

AIM

To present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013.

MATERIAL AND METHODS

From January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done.

RESULTS

In this period 3 223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in 33 Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult's mean age was 69,14 years (sd 17,64) and men were younger than women p-value <0,001. Children mean age was 2,38 years (sd 4,35). The most frequent indication for HEN was neurological disease for children (49,1%). and for adults (60,6%). Gastrostomy was the most used administration route for children (51%) while younger ones were fed with NGT (p-value 0,003) also older adults (48%) were fed with this type of tube (p-value <0,001). The most frequent reasons for cessation of treatment was death, 44,4% were children and 54,7% were adults.

CONCLUSIONS

The number of patients and hospitals registered increased in the last years while the other variables maintain steady. The registry developed allowing contrasted analysis of data in order to get more information.

摘要

目的

呈现NADYA - SENPE组2013年西班牙家庭肠内营养(HEN)登记处的结果。

材料与方法

记录2013年1月1日至12月31日HEN登记处的数据,并进行进一步的描述性和分析性分析。

结果

在此期间,西班牙33家医院登记了3223例患者(50.6%为男性),共3272次HEN事件。2013年的患病率为每百万居民67.11例患者/年。高比例患者(98.24%)年龄超过14岁。成年人平均年龄为69.14岁(标准差17.64),男性比女性年轻,p值<0.001。儿童平均年龄为2.38岁(标准差4.35)。HEN最常见的指征在儿童中是神经系统疾病(49.1%),在成年人中是神经系统疾病(60.6%)。胃造口术是儿童最常用的给药途径(51%),而年龄较小的儿童通过鼻胃管喂养(p值0.003),年龄较大的成年人(48%)也通过这种类型的管道喂养(p值<0.001)。治疗停止的最常见原因是死亡,儿童为44.4%,成年人是54.7%。

结论

过去几年登记的患者和医院数量增加,而其他变量保持稳定。该登记处的建立允许对数据进行对比分析以获取更多信息。

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