Wanden-Berghe Lozano Carmina, Campos Cristina, Burgos Peláez Rosa, Álvarez Julia, Frias Soriano Laura, Matia Martín María Pilar, Lobo-Támer Gabriela, de Luis Román Daniel Antonio, Gonzalo Marín Montserrat, Gómez Candela Carmen, Martínez Olmos Miguel A, Pintor Calleja Begoña, Luengo Pérez Luis Miguel, Santacruz Nieves, Irles Rocamora José Antonio, Higuera Pulgar Isabel, Padín Susana, Leyes García Pere, Sánchez Rebeca, Cardona Daniel, Martín M ª Ángeles, Ballesta Carmen, Suárez José Pablo, Tejera Cristina, Bonada Anna, Gardez Carmen, Penacho María Ángeles, Martínez María José, Virgili Casas M Nuria, Martín Tomás, Cánovas Bárbara, Díaz M Irene, Del Olmo Dolores, Carabaña Pérez Fátima, Parés Marimón Rosa M ª, Mauri Roca Sílvia, Romero Victoria, García Ignacio, Sánchez-Vilar Burdiel Olga, García Y, Miserachs Nuria, Tenorio Jiménez Carmen, Apezetxea Celaya Antxón, Pereira Manuel A, Sánchez Eva A, Ponce González Miguel Ángel
Hospital General Universitario De Alicante, Alicante. Fundación Para el Fomento de la Investigación Sanitari ay Biomédica (isabial-fisabio). Alicante.
Hospital Universitario Virgen Macarena.
Nutr Hosp. 2019 Mar 7;36(1):233-237. doi: 10.20960/nh.02365.
Objective: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2016 and 2017. Material and methods: from January 1st 2016 to December 31st 2017, the HEN registry was recorded and afterwards a further descriptive and analytical analysis was done. Results: in 2016, 4,578 active patients were recorded and prevalence was 98.33 patients per one million inhabitants; in 2017, 4,777 patients were recorded, with a prevalence of 102.57 per one million inhabitants; 50.8% were males in 2016 and 50.5% in 2017. During the period 2016-17, median age was 71.5 years (IIQ 57-83), 1,558 HEN episodes were finished and the main cause was death (793 patients, 50.89%). Adult males were younger than females (65.3 vs. 73.3 years, p-value < 0.001). The most frequent diagnosis was the neurological disorder that presents with aphagia or severe dysphagia (59%). Nasogastric tube was the most frequent administration route (48.3%) and it is the most widely used in elderly patients (p < 0.001). One hundred and twenty-six pediatric patients were registered (57.1% females). Median age at the beginning of HEN in children was four months. "Other disorders" was the most recorded diagnostic group (41.3%), followed by the group of neurological disorder that presents with aphagia or severe dysphagia. Regarding children, 57.6% were fed through gastrostomy and the younger ones were fed through nasogastric tube (p-value 0.001). Conclusions: the number of patients in the registry, as well as the number of participating centers, is progressively increasing. The main characteristics of the patients have not changed. Despite the increase in diagnostic possibilities in the pediatric population, the classification within the group of "Other pathologies" is quite significant.
呈现NADYA - SENPE小组2016年和2017年西班牙家庭肠内营养（HEN）登记处的结果。材料与方法：2016年1月1日至2017年12月31日，记录HEN登记处情况，之后进行进一步的描述性和分析性分析。结果：2016年，记录了4578名活跃患者，患病率为每百万居民98.33例；2017年，记录了4777例患者，患病率为每百万居民102.57例；2016年男性占50.8%，2017年占50.5%。在2016 - 17年期间，中位年龄为71.5岁（四分位间距57 - 83岁），1558次HEN疗程结束，主要原因是死亡（793例患者，50.89%）。成年男性比女性年轻（65.3岁对73.3岁，p值<0.001）。最常见的诊断是伴有吞咽困难或严重吞咽障碍的神经疾病（59%）。鼻胃管是最常见的给药途径（48.3%），且在老年患者中使用最广泛（p<0.001）。登记了126名儿科患者（女性占57.1%）。儿童开始HEN时的中位年龄为4个月。“其他疾病”是记录最多的诊断组（41.3%），其次是伴有吞咽困难或严重吞咽障碍的神经疾病组。关于儿童，57.6%通过胃造口喂养，年龄较小的通过鼻胃管喂养（p值0.001）。结论：登记处的患者数量以及参与中心的数量在逐步增加。患者的主要特征没有改变。尽管儿科人群的诊断可能性有所增加，但“其他病症”组内的分类相当显著。
