Wanden-Berghe Lozano Carmina, Virgili Casas Nuria, Ramos Boluda Esther, Cuerda Compés Cristina, Moreno Villares José Manuel, Pereira Cunill José Luis, Gómez Candela Carmen, Burgos Peláez Rosa, Penacho Lázaro Mª Ángeles, Pérez de la Cruz Antonio, Álvarez Hernández Julia, Gonzalo Marín Montserrat, Matía Martín Pilar, Martínez Faedo Ceferino, Sánchez Martos Eva Ángeles, Sanz Paris Alejandro, Campos Martín Cristina, Martín Folgueras Tomás, Martín Palmero M Ángela, Martín Fontalba María de Los Ángeles, Luengo Pérez Luis Miguel, Zugasti Murillo Ana, Martínez Ramírez María José, Carabaña Pérez Fátima, Martínez Costa Cecilia, Díaz Guardiola Patricia, Tejera Pérez Cristina, Parés Marimón Rosa Mª, Irles Rocamora José Antonio, Garde Orbaiz Carmen, Ponce González Miguel Ángel, García Zafra María Victoria, Sánchez Sánchez Rebeca, Urgeles Planella Juan Ramón, Apezetxea Celaya Antxón, Sánchez-Vilar Burdiel Olga, Joaquín Ortiz Clara, Suárez Llanos José Pablo, Pintor de la Maza Begoña, Leyes García Pere, Gil Martínez Mª Carmen, Mauri Roca Silvia, Carrera Santaliestra María José
1. Hospital General Universitario de Alicante, Alicante, España. 2. Fundación para el Fomento de la Investigación Sanitaria y Biomédica (ISABIAL-FISABIO), Alicante, España..
Nutr Hosp. 2017 Nov 24;34(5):1497-1501. doi: 10.20960/nh.1686.
To communicate HPN data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2016.
Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016.
There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%).
There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.
交流从NADYA - SENPE组（www.nadya - senpe.com）的家庭肠内营养（HPN）登记处获取的2016年数据。
对2016年1月1日至2016年12月31日期间在NADYA - SENPE组登记处收集的成年和儿科HPN患者数据进行描述性分析。
来自42家西班牙医院的286例患者（54.2%为女性），其中34例儿童和252例成人，共294次发病，代表2016年每百万居民中HPN患病率为6.16例/年。成人中最常见的诊断是“姑息性癌症”（25.8%），其次是“其他”。儿童中是“动力障碍”6例（17.6%），先天性巨结肠和坏死性小肠结肠炎均为5例儿童（14.7%）。首要指征在儿童（64.7%）和成人（37.3%）中均为短肠综合征，其次成人中28.6%为肠梗阻，儿童中14.7%为肠梗阻。儿童（70.6%）和成人（37.9%）最常使用的导管类型均为隧道式。成人中最常见的并发症是与导管相关的感染，其发生率为0.48次感染/1000天非蛋白能量（NPD）。在此期间，成人中有71次发病结束，主要原因是死亡（57.7%），其次是恢复经口途径（31%）。
登记处报告在家接受肠外营养患者的中心和专业合作者在逐渐增加。HPN的主要指征和结束的原因保持稳定。
