Walker Janiece L, Tovar Marlene, Harrison Tracie C, Wommack Joel
Res Theory Nurs Pract. 2015;29(2):158-72. doi: 10.1891/1541-6577.29.2.158.
People with disabilities should be routinely included in research studies if there is no specific reason for their exclusion. Regardless, they may be inadvertently excluded because of the procedures of the study. By conducting a community-based biological study with women aging with mobility limitations, these authors gained further understanding of their accommodation needs during research participation. The women aging with mobility limitations offered specific physical, cultural, or environmental needs that could have influenced the methods, procedures, and possible outcomes involved when conducting a biological study with this community living population. The authors and participants identified methodological challenges for women with mobility impairments within three key areas: recruitment procedures, laboratory procedures, and community-based data collection. The authors propose possible solutions to these identified challenges. It is our hope that this will begin a larger dialogue on how to routinely accommodate people with disabilities in biological research studies.
如果没有特殊理由将残疾人排除在外，就应将他们纳入常规研究。然而，由于研究程序的原因，他们可能会被无意中排除。通过对行动不便的老年女性开展一项基于社区的生物学研究，这些作者进一步了解了她们在参与研究期间的便利需求。行动不便的老年女性提出了可能影响对该社区常住人口进行生物学研究时所涉及的方法、程序和可能结果的具体身体、文化或环境需求。作者和参与者在三个关键领域确定了行动不便女性在方法上所面临的挑战：招募程序、实验室程序和基于社区的数据收集。作者针对这些已确定的挑战提出了可能的解决方案。我们希望这将开启一场关于如何在生物学研究中常规接纳残疾人的更广泛对话。
