Young Nancy L, Wabano Mary Jo, Ritchie Stephen D, Burke Tricia A, Pangowish Brenda, Corbiere Rita G
Laurentian University, 935 Ramsey Lake Road, Sudbury, ON, P3E 2C6, Canada.
Nahndahweh Tchigehgamig Health Centre, Wikwemikong, ON, P0P 2J0, Canada.
Health Qual Life Outcomes. 2015 Jul 22;13:105. doi: 10.1186/s12955-015-0296-3.
There are emerging opportunities to improve the health of Aboriginal children and youth. The Aboriginal Children's Health and Well-being Measure (ACHWM) was developed to enable Aboriginal communities to obtain group-level data from the perspectives of their children 8 to 18 years of age. The survey was developed in collaboration with children, based on the Medicine Wheel framework. The purpose of this study was to ensure that children and youth interpreted the ACHWM questions consistently and accurately and to establish the face validity of the survey.
Children and parents/caregivers from the Wikwemikong Unceded Indian Reserve (Canada) participated in a detailed interview process as they completed the ACHWM, in 2012. Each participant worked through their thought process verbally, to enable the interviewer to identify questions that were misinterpreted or inconsistently interpreted. Questions were revised based on feedback from the participants, and reviewed with new participants until a stable version was established. The resulting version was reviewed by health care providers and community members to further ensure cultural relevance and face validity within the community.
A total of 18 interviews, with 9 children and 9 caregivers, were required to achieve a stable version of the survey. The children ranged in age from 8 to 18 years. Revisions were required for 19 questions. Most of these revisions were minor linguistic changes. In addition, 6 questions were deleted due to consistent problems and 4 questions were created to address gaps identified during the process. Community members confirmed the appropriateness of the measure for their community and communicated their pride in their youth's role in the development of this survey.
The result was a 58-question version of the ACHWM that was consistently interpreted and culturally appropriate, and had face validity confirmed by experts from the community, children and their parents/caregivers. The ACHWM is ready to be assessed for relevance to other Aboriginal communities.
改善原住民儿童和青少年健康状况的机会不断涌现。原住民儿童健康与幸福衡量标准(ACHWM)的制定,旨在使原住民社区能够从其8至18岁儿童的角度获取群体层面的数据。该调查是在与儿童合作的基础上,依据药轮框架制定的。本研究的目的是确保儿童和青少年对ACHWM问题的解释一致且准确,并确定该调查的表面效度。
2012年,来自加拿大维克韦米孔未被割让印第安保留地的儿童及其父母/照顾者在完成ACHWM时参与了详细的访谈过程。每位参与者通过口头阐述自己的思考过程,以便访谈者识别出被误解或解释不一致的问题。根据参与者的反馈对问题进行修订,并与新的参与者进行审核,直至确定一个稳定的版本。最终版本由医疗保健提供者和社区成员进行审核,以进一步确保其在社区内的文化相关性和表面效度。
共进行了18次访谈,涉及9名儿童和9名照顾者,才获得了一个稳定的调查版本。儿童年龄在8至18岁之间。有19个问题需要修订。其中大多数修订是微小的语言调整。此外,由于存在持续问题,删除了6个问题,并新增了4个问题以填补过程中发现的空白。社区成员确认了该衡量标准对其社区的适用性,并表达了他们对青少年在这项调查制定过程中所发挥作用的自豪之情。
最终形成了一个包含58个问题的ACHWM版本,该版本得到了一致的解释,具有文化适宜性,并且其表面效度得到了社区专家、儿童及其父母/照顾者的确认。ACHWM已准备好接受与其他原住民社区相关性的评估。