Ngāi Tahu Māori Health Research Unit, Division of Health Sciences, University of Otago, Dunedin, New Zealand.
Ngāi Tahu Māori Health Research Unit, Division of Health Sciences, University of Otago, Dunedin, New Zealand
BMJ Open. 2023 Mar 30;13(3):e070156. doi: 10.1136/bmjopen-2022-070156.
To identify and describe (1) which health-related quality of life (HRQoL) measures have been used with Indigenous children/youth (aged 8-17 years) within the Pacific Rim; and (2) studies that refer to Indigenous health concepts in the use of child/youth HRQoL measures.
A scoping review.
Ovid (Medline), PubMed, Scopus, Web of Science and CINAHL were searched up until 25 June 2020.
Eligible papers were identified by two independent reviewers. Eligible papers were written in English, published between January 1990 and June 2020 and included an HRQoL measure used in research with Indigenous child/youth populations (aged between 8 and 17 years) in the Pacific Rim region.
Data extracted included study characteristics (year, country, Indigenous population, Indigenous sample size, age group), HRQoL measure characteristics (generic or condition-specific measure, child or adult measure, who completed the measure(s), dimensions, items and response scale of measure) and consideration of Indigenous concepts (created for Indigenous population, modified for Indigenous population, validated for Indigenous population, reliability in Indigenous populations, Indigenous involvement, reference to Indigenous theories/models/frameworks).
After removing duplicates, 1393 paper titles and abstracts were screened, and 543 had full-text review for eligibility. Of these, 40 full-text papers were eligible, reporting on 32 unique studies. Twenty-nine HRQoL measures were used across eight countries. Thirty-three papers did not acknowledge Indigenous concepts of health, and only two measures were specifically created for use with Indigenous populations.
There is a paucity of research investigating HRQoL measures used with Indigenous children/youth and a lack of involvement of Indigenous peoples in the development and use of HRQoL measures. We strongly recommend explicit consideration of Indigenous concepts when developing, validating, assessing and using HRQoL measures with Indigenous populations.
确定并描述（1）在环太平洋地区，哪些与健康相关的生活质量（HRQoL）测量方法已用于原住民儿童/青少年（8-17 岁）；以及（2）在使用儿童/青少年 HRQoL 测量方法时，参考原住民健康概念的研究。
范围综述。
在 2020 年 6 月 25 日之前，对 Ovid（Medline）、PubMed、Scopus、Web of Science 和 CINAHL 进行了检索。
两位独立评审员确定了合格论文。合格论文为英文，发表于 1990 年 1 月至 2020 年 6 月之间，纳入了环太平洋地区原住民儿童/青少年人群的研究中使用的 HRQoL 测量方法。
提取的数据包括研究特征（年份、国家、原住民人口、原住民样本量、年龄组）、HRQoL 测量特征（通用或特定于疾病的测量、儿童或成人测量、谁完成了测量、测量的维度、项目和反应量表）以及对原住民概念的考虑（为原住民人口创建、为原住民人口修改、为原住民人口验证、在原住民人口中的可靠性、原住民参与、参考原住民理论/模型/框架）。
去除重复项后，筛选了 1393 篇论文的标题和摘要，有 543 篇全文进行了资格审查。其中，40 篇全文符合条件，报告了 32 项独特的研究。在这 40 篇全文中，有 29 项 HRQoL 测量方法在 8 个国家使用。33 篇论文没有承认健康的原住民概念，只有两项措施是专门为原住民人口设计的。
在环太平洋地区，用于原住民儿童/青少年的 HRQoL 测量方法研究较少，原住民人民在 HRQoL 测量方法的开发、验证、评估和使用方面缺乏参与。我们强烈建议在使用原住民人群时，在开发、验证、评估和使用 HRQoL 测量方法时明确考虑原住民概念。
