Cheng Huilin, Sit Janet W H, Cheng Karis K F
School of Nursing, The Hong Kong Polytechnic University, Hom Hung, Hong Kong, China.
The Nethersole School of Nursing, The Chinese University of Hong Kong, Shatin, Hong Kong, China.
Support Care Cancer. 2016 Feb;24(2):791-798. doi: 10.1007/s00520-015-2845-z. Epub 2015 Jul 23.
Although we acknowledge the negative and positive aspects of the cancer survivorship experience, we have little information on this issue from the perspective of Chinese breast cancer survivors. This study aimed to explore the perceptions of negative and positive life changes following treatment completion among this population.
Using purposive sampling, 29 breast cancer survivors were selected from the attendees of a local cancer self-help organization in middle China and proceeded with semi-structured in-depth interviews. Each interview was transcribed verbatim and analyzed using directed content analysis.
Two predetermined categories were identified to represent participant perception of the breast cancer survivorship experience, namely, negative life changes and positive life changes. The first category included fear of recurrence, symptom experience, poor body image, altered sexuality and intimacy, and financial burden. The second category consisted of new life perspective, personal growth, and enhanced relationships with family.
Our findings contribute to the emerging evidence on the duality of breast cancer survivorship. This enhanced understanding of the specific negative and positive changes experienced by Chinese breast cancer survivors can assist health professionals in addressing survivorship issues by designing appropriate interventions to minimize negative consequences and enhance positive growth.
尽管我们认识到癌症幸存者经历中的消极和积极方面，但从中国乳腺癌幸存者的角度来看，我们对这个问题了解甚少。本研究旨在探讨该人群在治疗结束后对消极和积极生活变化的认知。
采用目的抽样法，从中国中部一个当地癌症自助组织的参与者中选取了29名乳腺癌幸存者，并进行了半结构化深度访谈。每次访谈都逐字记录，并采用定向内容分析法进行分析。
确定了两个预定类别来代表参与者对乳腺癌幸存者经历的认知，即消极生活变化和积极生活变化。第一类包括对复发的恐惧、症状体验、不良身体形象、性和亲密关系的改变以及经济负担。第二类包括新的生活视角、个人成长以及与家人关系的改善。
我们的研究结果为乳腺癌幸存者经历的双重性这一新兴证据做出了贡献。对中国乳腺癌幸存者所经历的具体消极和积极变化的这种深入理解，可以帮助卫生专业人员通过设计适当的干预措施来解决幸存者问题，以尽量减少消极后果并促进积极成长。
