Cheng Huilin, Sit Janet W H, Cheng Karis K F
School of Nursing, The Hong Kong Polytechnic University, Core A, Rm A129, Yuk Choi Road, Kowloon, Hong Kong, SAR.
The Nethersole School of Nursing, The Chinese University of Hong Kong, 7/F, ELB733, Esther Lee Building, Tai Po Road, Shatin, NT, Hong Kong, SAR.
Psychooncology. 2017 Jul;26(7):1044-1049. doi: 10.1002/pon.4279. Epub 2016 Oct 11.
With increasing awareness in the chronic nature of cancer, promoting the engagement of breast cancer survivors in self-management has become a priority of cancer care reform initiatives. This study aimed to reveal Chinese breast cancer survivors' views and experiences of self-management in extended survivorship.
Archived interview transcripts from 19 breast cancer survivors (<5 years since diagnosis) were subjected to a secondary analysis. Each transcript was re-examined through qualitative content analysis.
Three categories were established to represent the perceptions of the participants on their self-management tasks related to health and well-being, emotions, and roles and relationships. Managing health and well-being covers modifying lifestyle, taking traditional Chinese medicine, attending regular follow-ups, managing symptoms, and adhering to hormonal therapy. Managing emotions involves maintaining a positive attitude and utilizing supportive resources. Managing roles and relationships comprises adjusting to life as cancer survivors, maintaining marital relationships, and performing familial and other social roles.
Most participants actively participated in various self-management tasks and behaviors that can help improve their health and prevent cancer recurrence. They may exhibit optimal self-management in their emotions and most health aspects but may exert limited efforts in managing their different roles during survivorship.
随着对癌症慢性本质的认识不断提高，促进乳腺癌幸存者参与自我管理已成为癌症护理改革举措的重点。本研究旨在揭示中国乳腺癌幸存者在长期生存期间自我管理的观点和经历。
对19名乳腺癌幸存者（诊断后<5年）的存档访谈记录进行二次分析。通过定性内容分析对每份记录进行重新审查。
确立了三类内容，以代表参与者对其与健康和幸福、情绪以及角色和关系相关的自我管理任务的看法。管理健康和幸福包括改变生活方式、服用中药、定期随访、管理症状以及坚持激素治疗。管理情绪包括保持积极态度和利用支持资源。管理角色和关系包括适应癌症幸存者的生活、维持婚姻关系以及履行家庭和其他社会角色。
大多数参与者积极参与各种有助于改善健康和预防癌症复发的自我管理任务和行为。他们在情绪和大多数健康方面可能表现出最佳的自我管理，但在生存期间管理不同角色方面可能投入有限。
