Virginia Mason Medical Center, Seattle, WA, USA.
Virginia Mason Medical Center, Seattle, WA, USA.
Healthc (Amst). 2013 Dec;1(3-4):91-9. doi: 10.1016/j.hjdsi.2013.07.004. Epub 2013 Aug 29.
Experience-based design is an emerging method used to capture the emotional content of patient and family member healthcare experiences, and can serve as the foundation for patient-centered healthcare improvement. However, a core tool-the experience-based design questionnaire-requires words with consistent emotional meaning. Our objective was to identify and evaluate an emotion word set reliably categorized across the demographic spectrum as expressing positive, negative, or neutral emotions for experience-based design improvement work.
We surveyed 407 patients, family members, and healthcare workers in 2011. Participants designated each of 67 potential emotion words as positive, neutral, or negative based on their emotional perception of the word. Overall agreement was assessed using the kappa statistic. Words were selected for retention in the final emotion word set based on 80% simple agreement on classification of meaning across subgroups.
The participants were 47.9% (195/407) patients, 19.4% (33/407) family members and 32.7% (133/407) healthcare staff. Overall agreement adjusted for chance was moderate (k=0.55). However, agreement for positive (k=0.69) and negative emotions (k=0.68) was substantially higher, while agreement in the neutral category was low (k=0.11). There were 20 positive, 1 neutral, and 14 negative words retained for the final experience-based design emotion word set.
We identified a reliable set of emotion words for experience questionnaires to serve as the foundation for patient-centered, experience-based redesign of healthcare.
Incorporation of patient and family member perspectives in healthcare requires reliable tools to capture the emotional content of care touch points.
基于经验的设计是一种新兴的方法，用于捕捉患者和家属医疗体验的情感内容，并可以作为以患者为中心的医疗保健改进的基础。然而，一个核心工具——基于经验的设计问卷——需要具有一致情感含义的词语。我们的目标是确定和评估一套情感词汇，这些词汇在整个人口统计学范围内可靠地分类，以表达积极、消极或中性的情感，用于基于经验的设计改进工作。
我们在 2011 年调查了 407 名患者、家属和医护人员。参与者根据他们对单词的情感感知，将 67 个潜在情感单词中的每一个标记为积极、中性或消极。使用kappa 统计量评估整体一致性。根据 80%的简单一致分类，选择单词保留在最终的情感词汇集中。
参与者包括 47.9%（195/407）的患者、19.4%（33/407）的家属和 32.7%（133/407）的医护人员。调整机会的整体一致性为中等（k=0.55）。然而，积极（k=0.69）和消极情绪（k=0.68）的一致性显著更高，而中性类别的一致性较低（k=0.11）。最终保留了 20 个积极、1 个中性和 14 个消极的情感词汇用于基于经验的设计情感词汇集。
我们确定了一套可靠的情感词汇，用于基于经验的问卷，作为以患者为中心、基于经验的医疗保健重新设计的基础。
在医疗保健中纳入患者和家属的观点需要可靠的工具来捕捉护理接触点的情感内容。
