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慢性关节痛的时间差异显著意义、传记性中断和自我管理。

Temporally divergent significant meanings, biographical disruption and self-management for chronic joint pain.

机构信息

University of Bristol, UK.

Keele University, UK.

出版信息

Health (London). 2017 Jul;21(4):357-374. doi: 10.1177/1363459315600773. Epub 2015 Aug 19.

Abstract

Self-management is recommended by policy and clinical guidelines as a way to contend with the growing incidence of osteoarthritis-related joint pain in an ageing population. Sociologists assert that self-management is as much about lay strategies for dealing with the biographically disruptive qualities of chronic illness as opposed to solely complying with medical regimens. The original concept of biographical disruption coined by Bury is not uncontested. Chronic joint pain has been characterised as featuring 'co-existing meanings' of significance and consequence. The former conferring no biographical disruption due to osteoarthritis being associated with 'normal ageing' and the latter causing biographical disruption due to the corporeal limitations joint pain imparts, which, in turn, can influence whether, why and how self-management is undertaken. This article reports findings from repeat interviews and a diary study completed by 22 participants with chronic knee pain. We explore the co-existing but temporally divergent 'meanings as significance' associated with knee pain. Participants describe the onset and current experience of the pain in terms of biographical normality (retrospective or contemporaneous meanings). Future meanings as significance are mediated by cultural beliefs about ageing and current physical consequences of the condition, and also have a distinct character of their own. Knee pain is associated with the possibility of disability and harbours a distinct risk; potential disruption to everyday social relationships, notably relating to care and dependency. In turn, future meanings of significance influence the preventative self-management strategies that people utilise. We argue for a more cogent theoretical understanding of temporal dimensions of biographical disruption, biographical work and subsequent self-management by utilising and extending the thought of Bury, and Corbin and Strauss. Doing so helps to understand patient self-management strategies and facilitates self-management support in clinical settings for osteoarthritis and potentially other chronic conditions.

摘要

自我管理作为一种应对人口老龄化导致的骨关节炎相关关节疼痛发病率不断上升的方法,已被政策和临床指南所推荐。社会学家断言,自我管理不仅是遵守医疗方案,更多的是应对慢性病在个人生活中带来的破坏性影响的策略。伯里(Bury)提出的“生活史中断”这一最初概念并非没有争议。慢性关节疼痛被描述为具有“同时存在的意义”,这些意义既重要又有影响。前者由于骨关节炎与“正常衰老”有关,因此不会造成生活史中断,而后者由于关节疼痛带来的身体限制造成生活史中断,这种限制反过来又会影响人们是否、为何以及如何进行自我管理。本文报告了对 22 名慢性膝痛患者进行重复访谈和日记研究的结果。我们探讨了与膝痛同时存在但在时间上不同的“意义即重要性”。参与者从生活史正常性(回溯性或同期性意义)的角度描述了疼痛的发作和当前体验。未来的意义即重要性受到有关衰老的文化信仰和当前疾病身体后果的影响,并且具有自身独特的特征。膝痛与残疾的可能性有关,并且存在明显的风险,可能会破坏日常的社会关系,特别是与照顾和依赖有关。反过来,未来的重要性意义会影响人们采取的预防自我管理策略。我们认为,通过利用和扩展伯里和科宾与斯特劳斯的思想,对生活史中断、生活史工作和随后的自我管理的时间维度有更清晰的理论理解,有助于理解患者的自我管理策略,并为骨关节炎和潜在的其他慢性疾病在临床环境中提供自我管理支持。

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