School of Sociology and Social Policy, University of Nottingham, University Park, Nottingham, UK.
Department of Cardiovascular Sciences, College of Life Sciences, University of Leicester, Leicester, UK; John Walls Renal Unit, Leicester General Hospital, University Hospitals of Leicester NHS Trust, Leicester, UK.
Soc Sci Med. 2023 May;325:115900. doi: 10.1016/j.socscimed.2023.115900. Epub 2023 Apr 11.
Here we propose the term 'biographical dialectics' as a sister term to 'biographical disruption' to capture the ongoing problem solving that characterises the lives of many people living with life limiting chronic illnesses. The paper is based on the experiences of 35 adults with end-stage kidney disease (ESKD) in receipt of haemodialysis. Photovoice and semi-structured interviews showed that ESKD and the use of haemodialysis was widely agreed to be biographically disruptive. In talking about and showing disruption through photographs the participants' ongoing problem solving was universal across their diverse experiences. 'Biographical disruption' and Hegalian dialectical logic, are drawn on to make sense of these actions and to further understand the personal and disruptive experience of chronic illness. Based on this, 'biographical dialectics' captures the work that is required to account for and manage the enduring and biographical impact of chronic illness that follows the initial disruption of diagnosis and continues as life progresses.
在这里，我们提出“传记辩证法”这一术语，作为“传记中断”的姊妹术语，以捕捉许多患有生命有限的慢性疾病的人的生活特征，即持续的问题解决。本文基于 35 名接受血液透析的终末期肾病（ESKD）成年人的经历。影像和半结构化访谈表明，ESKD 和血液透析的使用被广泛认为是传记上的中断。通过照片来谈论和展示这种中断，参与者在解决问题时的持续努力在他们多样化的经历中是普遍存在的。“传记中断”和黑格尔辩证逻辑被用来理解这些行为，并进一步理解慢性疾病的个人和破坏性经历。基于此，“传记辩证法”捕捉到了在初始诊断中断后，随着生命的继续，为了说明和管理慢性疾病的持久和传记影响而需要进行的工作。
