Hinton Lisa, Locock Louise, Knight Marian
Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, Medical Sciences Division, University of Oxford, Oxford.
Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, Medical Sciences Division, University of Oxford, Oxford and NIHR Oxford Biomedical Research Centre, Oxford.
Br J Gen Pract. 2015 Sep;65(638):e563-9. doi: 10.3399/bjgp15X686461.
One in 100 women who give birth in the UK develop life-threatening illnesses during childbirth. Without urgent medical attention these illnesses could lead to the mother's death. Little is known about how the experience of severe illness in childbirth affects the mother, baby, and family.
As part of the UK National Maternal Near-miss Surveillance Programme, this study explored the experiences of women and their partners of life-threatening illnesses in childbirth, to identify the long-term impact on women and their families.
Qualitative study based on semi-structured narrative interviews. Interviews were conducted in patients' homes in England and Scotland from 2010 to 2014.
An in-depth interview study was conducted with 36 women and 11 partners. A maximum variation sample was sought and interviews transcribed for thematic analysis with constant comparison.
Women's birth-related illnesses often had long-lasting effects on their mental as well as physical health, including anxiety, panic attacks, and post-traumatic stress disorder. In some cases the partner's mental health was also affected. Women often described feeling isolated. Their experiences can have a profound impact on their relationships, family life, career, and future fertility. While some women described receiving good support from their GP, others felt there was little support available for them or their families after discharge from hospital.
A near-miss event can have long-lasting and major effects on women and their families. Support in primary care, including watchful waiting for mental health impacts, can play a valuable role in helping these families come to terms with their emergency experience. The findings highlight the importance of communication between primary and secondary care.
在英国，每100名分娩的女性中就有1人在分娩期间患上危及生命的疾病。如果得不到紧急医疗救治，这些疾病可能导致母亲死亡。关于分娩时患重病的经历如何影响母亲、婴儿和家庭，人们知之甚少。
作为英国国家孕产妇险些死亡监测项目的一部分，本研究探讨了女性及其伴侣在分娩时遭遇危及生命疾病的经历，以确定对女性及其家庭的长期影响。
基于半结构化叙事访谈的定性研究。2010年至2014年在英格兰和苏格兰患者家中进行访谈。
对36名女性和11名伴侣进行了深入访谈研究。寻求最大差异样本，并对访谈进行转录，以便通过持续比较进行主题分析。
与分娩相关的疾病往往对女性的身心健康都有持久影响，包括焦虑、惊恐发作和创伤后应激障碍。在某些情况下，伴侣的心理健康也会受到影响。女性经常表示感到孤立无援。她们的经历会对其人际关系、家庭生活、职业和未来生育产生深远影响。虽然一些女性表示从全科医生那里得到了良好的支持，但另一些女性觉得出院后她们自己或家人几乎得不到什么支持。
险些死亡事件可能对女性及其家庭产生长期且重大的影响。初级保健中的支持措施，包括密切关注心理健康影响，在帮助这些家庭应对紧急情况方面可以发挥重要作用。研究结果凸显了初级保健和二级保健之间沟通的重要性。
