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癌症:一个处于风险中的家族。

Cancer: a family at risk.

作者信息

Woźniak Katarzyna, Iżycki Dariusz

机构信息

Studium Doktoranckie, Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu.

Zakład Immunologii Nowotworów, Wydział Lekarski II, Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu.

出版信息

Prz Menopauzalny. 2014 Sep;13(4):253-61. doi: 10.5114/pm.2014.45002. Epub 2014 Sep 9.

Abstract

The diagnosis of cancer is a family experience that changes the lives of all its members, bringing an immense amount of stress and many challenging situations. The daily routine, common activities and distribution of duties all have to change. Family members follow the phases of the disease, very often suffering comparable or greater distress than the patient. They use various coping methods which aim at helping both the sick relative and themselves. These methods, together with emotional responses, change over time according to the phase of the disease. Cancer puts the family at risk since it imposes an alternation in the relations among family members. It affects the couple's relationship, their sex life, and it can also be a cause of major trauma among their children and adolescents. The diagnosis of cancer brings also individual risks for the family members in terms of psychological and physical health impairment. Family caregivers often feel overloaded with the additional obligations and roles they have to pick up. They find it increasingly burdening to care full-time for the household and provide emotional support for the patient. The family's problems and the way family members regard the disease may be also a result of the family system they are in. This article describes the nature of caregiving to a patient with cancer and the biggest concerns for the family.

摘要

癌症诊断是一种会改变所有家庭成员生活的家庭经历,带来巨大压力和诸多挑战情况。日常生活、日常活动及职责分配都必须改变。家庭成员会经历疾病的各个阶段,他们常常承受着与患者相当或更大的痛苦。他们采用各种应对方法,旨在帮助患病亲属和他们自己。这些方法以及情绪反应会随着疾病阶段的变化而改变。癌症使家庭面临风险,因为它会导致家庭成员之间关系的改变。它会影响夫妻关系、性生活,还可能成为他们孩子和青少年遭受重大创伤的原因。癌症诊断在心理和身体健康损害方面也给家庭成员带来个人风险。家庭护理者常常因不得不承担额外的义务和角色而感到不堪重负。他们发现全职照顾家庭并为患者提供情感支持越来越沉重。家庭问题以及家庭成员看待疾病的方式也可能是他们所处家庭系统的结果。本文描述了照顾癌症患者的性质以及家庭最大担忧所在。

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Quantifying the burden of informal caregiving for patients with cancer in Europe.量化欧洲癌症患者的非正式护理负担。
Support Care Cancer. 2014 Jun;22(6):1637-46. doi: 10.1007/s00520-014-2122-6. Epub 2014 Feb 5.
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Caregiver burden--a critical discussion.照顾者负担——批判性讨论。
Int J Nurs Stud. 2013 Mar;50(3):431-41. doi: 10.1016/j.ijnurstu.2012.10.005. Epub 2012 Nov 3.
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The challenge of quality cancer care for family caregivers.为癌症患者家属提供优质护理的挑战。
Semin Oncol Nurs. 2012 Nov;28(4):205-12. doi: 10.1016/j.soncn.2012.09.002.
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Coping and its effects on cancer caregiving.应对方式及其对癌症照护的影响。
Support Care Cancer. 2013 Feb;21(2):385-95. doi: 10.1007/s00520-012-1525-5. Epub 2012 Jun 21.

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