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在银屑病关节炎中促进以患者为中心的护理:欧洲多学科视角下对改善患者体验的探讨

Promoting patient-centred care in psoriatic arthritis: a multidisciplinary European perspective on improving the patient experience.

作者信息

Betteridge N, Boehncke W-H, Bundy C, Gossec L, Gratacós J, Augustin M

机构信息

Neil Betteridge Associates, London, UK.

Department of Dermatology, Geneva University Hospital, Geneva, Switzerland.

出版信息

J Eur Acad Dermatol Venereol. 2016 Apr;30(4):576-85. doi: 10.1111/jdv.13306. Epub 2015 Sep 16.

Abstract

Patients with psoriatic arthritis (PsA) may not be optimally treated. The impact of the disease extends beyond skin and joint symptoms, impairing quality of life. This indicates that the adoption of a patient-focused approach to PsA management is necessary. An expert multidisciplinary working group was convened, with the objective of developing an informed perspective on current best practice and needs for the future management of PsA. Topics of discussion included the barriers to current best practice and calls to action for the improvement of three areas in PsA management: early and accurate diagnosis of PsA, management of disease progression and management of the impact of the condition on the patient. The working group agreed that, to make best use of the available of diagnostic tools, clinical care recommendations and effective treatments, there is a clear need for healthcare professionals from different disciplines to collaborate in the management of PsA. By facilitating appropriate and rapid referral, providing high quality information about PsA and its treatment to patients, and actively involving patients when choosing management plans and setting treatment goals, management of PsA can be improved. The perspective of the working group is presented here, with recommendations for the adoption of a multidisciplinary, patient-focused approach to the management of PsA.

摘要

银屑病关节炎(PsA)患者可能未得到最佳治疗。该疾病的影响不仅限于皮肤和关节症状,还会损害生活质量。这表明采用以患者为中心的方法来管理PsA是必要的。为此召集了一个专家多学科工作组,目的是就PsA当前的最佳实践以及未来管理需求形成明智的观点。讨论的主题包括当前最佳实践的障碍以及改善PsA管理三个领域的行动呼吁:PsA的早期准确诊断、疾病进展管理以及该病症对患者影响的管理。工作组一致认为,为了充分利用现有的诊断工具、临床护理建议和有效治疗方法,不同学科的医疗保健专业人员显然需要在PsA的管理中进行协作。通过促进适当且快速的转诊、向患者提供有关PsA及其治疗的高质量信息,以及在选择管理计划和设定治疗目标时积极让患者参与,可以改善PsA的管理。本文介绍了工作组的观点,并就采用多学科、以患者为中心的方法来管理PsA提出了建议。

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