Kwong Sandy, Bedard Angela
Patient and Family Counseling Services, BC Cancer Agency, 600 West 10th Avenue, Vancouver, BC, V5Z 4E6, Canada.
Provincial Survivorship Program, BC Cancer Agency, Vancouver, BC, Canada.
J Cancer Educ. 2016 Sep;31(3):605-9. doi: 10.1007/s13187-015-0899-8.
The needs of cancer survivors have been well documented and tend to be higher in immigrant populations. In order to help address unmet needs of Chinese-speaking cancer survivors, we have developed a structured psycho-educational program for this group. The program development was informed by both cultural values of the population and published recommendations for cancer survivorship education and support. The program, entitled BE ACTIVE, includes topics related to key domains in cancer survivorship: psychosocial aspects, general medical management and follow up for late effects, complementary medicine, and lifestyle management through fitness and nutrition. We studied the program delivery in 2012 and 2013, where a total of 124 individuals took part. Participants reported high satisfaction, learning gains, and the willingness to recommend the program to others; they rated their understanding of the behaviors needed for wellness and their motivation for change as high. A facilitator toolkit, which includes topic content development guides and presentation examples, was developed to assist with delivery of the program by other centers. This type of program can improve access and delivery to underserved populations with unmet needs and may also benefit cancer survivors in other jurisdictions with similar concerns.
癌症幸存者的需求已有充分记录,且在移民群体中往往更为突出。为了帮助满足说中文的癌症幸存者未得到满足的需求,我们为该群体开发了一个结构化的心理教育项目。项目的开发既考虑了该群体的文化价值观,也参考了已发表的癌症幸存者教育与支持建议。这个名为“积极行动”(BE ACTIVE)的项目涵盖了癌症幸存者关键领域的相关主题:心理社会方面、一般医疗管理及后期影响的随访、补充医学,以及通过健身和营养进行生活方式管理。我们在2012年和2013年对该项目的实施情况进行了研究,共有124人参与。参与者报告了高度的满意度、学习收获,以及向他人推荐该项目的意愿;他们对自身对健康所需行为的理解以及改变的动机评价很高。还开发了一个 facilitator 工具包,其中包括主题内容开发指南和演示示例,以协助其他中心实施该项目。这类项目可以改善对有未满足需求的服务不足人群的服务获取和提供情况,也可能使其他有类似问题的司法管辖区的癌症幸存者受益。