Withall Janet, Haase Anne M, Walsh Nicola E, Young Anita, Cramp Fiona
Faculty of Health & Applied Sciences, University of the West of England, Bristol BS16 1DD, United Kingdom.
Centre for Exercise, Nutrition and Health Sciences, School for Policy Studies, University of Bristol, Bristol BS8 1TZ, United Kingdom.
Physiotherapy. 2016 Sep;102(3):264-71. doi: 10.1016/j.physio.2015.07.002. Epub 2015 Aug 8.
Physical activity (PA) in patients with rheumatoid arthritis (RA) is lower than in the general population. PA can improve physical function in RA, decrease chronic inflammation and reduce pain, without adversely affecting disease activity.
To explore patient's views on approaches to delivering PA programmes and inform a programme to maximise functional ability through long-term engagement with PA.
Qualitative data were collected via three focus groups which explored the views of people with RA of their PA support needs following diagnosis; experiences relating to PA; motivators and facilitators to support PA engagement and the suitability for people with RA of evidence based PA programmes designed for other long-term conditions.
Study participants (15 female, 4 male; 59.9 (standard deviation (SD) 10.3) years) had a mean time (SD) since diagnosis of 44 (34) months. Data analysis yielded 4 key themes relating to PA programmes: (1) why people join and why they drop out; (2) venue and timing; (3) what people want to do and hear; and (4) who should deliver programmes and how.
Patients with RA are interested in PA programmes 6 to 12 months after diagnosis, which support safe exercise and provide expert physiotherapist input. Recommendation by trusted health professionals and promotion of the benefits for 'people like me' would positively impact recruitment and retention. Key elements of the programme include proficient, safety-oriented exercise guidance, RA education, peer support, relaxation, coping strategies and self-set goals. Findings indicate that a group-based programme with a social aspect would support adherence.
类风湿关节炎(RA)患者的身体活动(PA)水平低于普通人群。PA可改善RA患者的身体功能,减轻慢性炎症并缓解疼痛,且不会对疾病活动产生不利影响。
探讨患者对实施PA计划方法的看法,并为通过长期参与PA来最大化功能能力的计划提供信息。
通过三个焦点小组收集定性数据,探讨RA患者在诊断后对PA支持需求的看法;与PA相关的经历;支持PA参与的动机和促进因素,以及为其他长期病症设计的循证PA计划对RA患者的适用性。
研究参与者(15名女性,4名男性;年龄59.9(标准差(SD)10.3)岁)自诊断以来的平均时间(SD)为44(34)个月。数据分析得出与PA计划相关的4个关键主题:(1)人们加入和退出的原因;(2)场所和时间;(3)人们想做什么和想听什么;(4)谁应该实施计划以及如何实施。
RA患者在诊断后6至12个月对PA计划感兴趣,这些计划支持安全锻炼并提供专业物理治疗师的指导。值得信赖的健康专业人员的推荐以及对“像我这样的人”的益处宣传将对招募和留存产生积极影响。该计划的关键要素包括熟练的、以安全为导向的运动指导、RA教育、同伴支持、放松、应对策略和自我设定的目标。研究结果表明,具有社交元素的团体计划将有助于提高依从性。