Salmon Victoria E, Hewlett Sarah, Walsh Nicola E, Kirwan John R, Morris Maria, Urban Marie, Cramp Fiona
Institute of Health Research, University of Exeter College of Medicine and Health, College House, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK.
Faculty of Health & Applied Sciences, University of the West of England, Blackberry Hill, Bristol, BS16 1DD, UK.
BMC Musculoskelet Disord. 2019 May 4;20(1):194. doi: 10.1186/s12891-019-2558-4.
Fatigue is a major symptom of rheumatoid arthritis (RA). There is some evidence that physical activity (PA) may be effective in reducing RA fatigue. However, few PA interventions have been designed to manage fatigue and there is limited evidence of end-user input into intervention development. The aim of this research was to co-design an intervention to support self-management of RA fatigue through modifying PA.
A series of studies used mixed methodological approaches to co-design a fatigue management intervention focused on modifying PA based on UK Medical Research Council guidance, and informed by the Behaviour Change Wheel theoretical framework. Development was based on existing evidence, preferences of RA patients and rheumatology healthcare professionals, and practical issues regarding intervention format, content and implementation.
The resulting group-based intervention consists of seven sessions delivered by a physiotherapist over 12 weeks. Each session includes an education and discussion session followed by supervised PA chosen by the participant. The intervention is designed to support modification and maintenance of PA as a means of managing fatigue. This is underpinned by evidence-based behaviour change techniques that might support changes in PA behaviour. Intervention delivery is interactive and aims to enhance capability, opportunity and motivation for PA.
This study outlines stages in the systematic development of a theory-based intervention designed through consultation with RA patients and healthcare professionals to reduce the impact of RA fatigue. The feasibility of future evaluation of the intervention should now be determined.
疲劳是类风湿性关节炎(RA)的主要症状。有证据表明体育活动(PA)可能有效减轻RA疲劳。然而,很少有PA干预措施是专门为管理疲劳而设计的,而且终端用户对干预措施开发的投入证据有限。本研究的目的是共同设计一种干预措施,通过调整PA来支持RA疲劳的自我管理。
一系列研究采用混合方法,根据英国医学研究委员会的指导方针,并在行为改变轮理论框架的指导下,共同设计一种以调整PA为重点的疲劳管理干预措施。该干预措施的开发基于现有证据、RA患者和风湿病医疗专业人员的偏好,以及有关干预形式、内容和实施的实际问题。
最终形成的基于小组的干预措施包括由物理治疗师在12周内进行的七次课程。每次课程包括一次教育和讨论环节,随后是参与者选择的有监督的PA。该干预措施旨在支持PA的调整和维持,作为管理疲劳的一种手段。这以可能支持PA行为改变的循证行为改变技术为基础。干预实施具有互动性,旨在增强进行PA的能力、机会和动力。
本研究概述了通过与RA患者和医疗专业人员协商设计的基于理论的干预措施的系统开发阶段。现在应该确定该干预措施未来评估的可行性。