Bertilsson Ann-Sofie, Eriksson Gunilla, Ekstam Lisa, Tham Kerstin, Andersson Magnus, von Koch Lena, Johansson Ulla
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden Department of Neuroscience, Rehabilitation Medicine, Uppsala University, Uppsala, Sweden.
Clin Rehabil. 2016 Aug;30(8):765-75. doi: 10.1177/0269215515603780. Epub 2015 Sep 22.
Compare caregiver burden, provision of informal care, participation in everyday occupations and life satisfaction of caregivers to people with stroke, who either had received a client-centred, activities of daily living intervention or usual activities of daily living interventions.
A multicentre cluster randomized controlled trial in which 16 rehabilitation units were randomly assigned to deliver a client-centred, activities of daily living intervention or usual activities of daily living interventions. Caregiver outcomes were compared cross-sectionally at 12 months and changes in outcomes between three and 12 months after people with stroke were included in the study.
Inpatient and outpatient rehabilitation.
Caregivers of people with stroke enrolled in the trial.
A client-centred, activities of daily living intervention aiming to increase agency in daily activities and participation in everyday life for people after stroke.
Caregiver Burden Scale, Occupational Gaps Questionnaire, LiSat-11.
There were no differences in outcomes between caregivers in the client-centred, activities of daily living (n = 88) and the usual activities of daily living (n = 95) group at 12 months. The caregiver burden score was 42.7 vs. 41.8, p = 0.75, mean occupational gaps were 3.5 vs. 4.0, p = 0.52 and satisfaction with life was 53% vs. 50%, p = 0.87. There were no differences in changes between three and 12 months. However, within groups there were significant differences in caregiver burden, factor general strain, for caregivers in the client-centred, activities of daily living group, and in provision of informal care for the usual activities of daily living group.
The client-centred intervention did not bring about any difference between caregiver-groups, but within groups some difference was found for caregiver burden and informal care.
比较为中风患者提供以患者为中心的日常生活活动干预或常规日常生活活动干预的照护者的照护负担、非正式照护提供情况、日常活动参与度和生活满意度。
一项多中心整群随机对照试验，16个康复单元被随机分配提供以患者为中心的日常生活活动干预或常规日常生活活动干预。在纳入中风患者后的12个月对照护者的结局进行横断面比较，并比较3至12个月期间结局的变化。
住院和门诊康复。
纳入试验的中风患者的照护者。
一项以患者为中心的日常生活活动干预，旨在提高中风后患者在日常活动中的自主性和日常生活参与度。
照护者负担量表、职业差距问卷、LiSat-11。
在12个月时，以患者为中心的日常生活活动组（n = 88）和常规日常生活活动组（n = 95）的照护者结局无差异。照护者负担得分分别为42.7和41.8，p = 0.75；平均职业差距分别为3.5和4.0，p = 0.52；生活满意度分别为53%和50%，p = 0.87。3至12个月期间的变化无差异。然而，在组内，以患者为中心的日常生活活动组的照护者在照护负担、一般压力因子方面存在显著差异，常规日常生活活动组的照护者在非正式照护提供方面存在显著差异。
以患者为中心的干预在照护者组之间未产生任何差异，但在组内发现了照护负担和非正式照护方面的一些差异。
