Grime Christopher J, Greenaway Catherine, Clarke Simon, Balfour-Lynn Ian M
Royal Brompton and Harefield NHS Foundation Trust.
Surrey and Sussex Healthcare NHS Trust.
Paediatr Respir Rev. 2015 Oct;16 Suppl 1:19-21. doi: 10.1016/j.prrv.2015.07.011. Epub 2015 Sep 26.
Pulmonary exacerbations and malabsorption in children with cystic fibrosis (CF) can lead to faltering growth and poor weight gain. Children with a higher BMI (body mass index) show a slower decline in lung function. Our specialist CF centre has experienced a death following gastrostomy insertion in a young CF child, despite maximal medical intervention, which has made us reflect on our practice and the urgency with which we discuss the option for a gastrostomy to improve nutrition.