Kaye Jane, Muddyman Dawn, Smee Carol, Kennedy Karen, Bell Jessica
HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
Nuffield Department of Population Health, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, Old Road Campus, Oxford, OX3 7LF, UK.
Life Sci Soc Policy. 2015;11:10. doi: 10.1186/s40504-015-0028-9. Epub 2015 Sep 28.
Innovations in information technologies have facilitated the development of new styles of research networks and forms of governance. This is evident in genomics where increasingly, research is carried out by large, interdisciplinary consortia focussing on a specific research endeavour. The UK10K project is an example of a human genomics consortium funded to provide insights into the genomics of rare conditions, and establish a community resource from generated sequence data. To achieve its objectives according to the agreed timetable, the UK10K project established an internal governance system to expedite the research and to deal with the complex issues that arose. The project's governance structure exemplifies a new form of network governance called 'pop-up' governance. 'Pop-up' because: it was put together quickly, existed for a specific period, was designed for a specific purpose, and was dismantled easily on project completion. In this paper, we use UK10K to describe how 'pop-up' governance works on the ground and how relational, hierarchical and contractual governance mechanisms are used in this new form of network governance.
信息技术的创新推动了新型研究网络和治理形式的发展。这在基因组学领域表现得很明显，越来越多的研究由大型跨学科联盟开展，专注于特定的研究工作。英国十万人基因组计划（UK10K）就是一个人类基因组学联盟的例子，该联盟获得资助以深入了解罕见病的基因组学，并从生成的序列数据中建立一个社区资源。为了按照商定的时间表实现其目标，UK10K项目建立了一个内部治理系统，以加快研究进程并处理出现的复杂问题。该项目的治理结构体现了一种名为“弹出式”治理的新型网络治理形式。之所以称为“弹出式”，是因为：它组建迅速，在特定时期存在，为特定目的而设计，并且在项目完成后易于解散。在本文中，我们以UK10K为例，描述“弹出式”治理在实际中的运作方式，以及在这种新型网络治理中如何使用关系型、层级型和契约型治理机制。
