测量烧伤瘢痕对健康相关生活质量的影响：儿童和成人布里斯班烧伤瘢痕影响量表（BBSIP）的开发和初步内容验证。

Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults.

机构信息

Centre for Children's Burns and Trauma Research, Child Health Research Centre, Level 4, Foundation Building, Royal Children's Hospital, Herston Rd, Herston, Brisbane, Queensland 4006, Australia; Central Queensland Hospital and Health Service, East St, Rockhampton, Queensland 4700, Australia.

School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, Brisbane, Queensland 4067, Australia.

出版信息

Burns. 2015 Nov;41(7):1405-19. doi: 10.1016/j.burns.2015.05.021. Epub 2015 Oct 1.

DOI:10.1016/j.burns.2015.05.021

PMID:26421693

Abstract

INTRODUCTION

No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults.

METHOD

Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP).

RESULTS

Participants comprised Australian adults (n=23) and children (n=19) with burn scarring; caregivers of children with burn scarring (n=28); and international scar management experts (n=14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors.

CONCLUSION

The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway.

摘要

简介

目前尚无专门针对烧伤瘢痕的健康相关生活质量（HRQOL）评估工具。本研究旨在开发一种患者报告的评估 HRQOL 的工具，以评估烧伤瘢痕对儿童和成人的影响。

方法

采用半结构式访谈、内容验证调查和认知访谈，开发和测试新工具——布里斯班烧伤瘢痕影响量表（BBSIP）的内容效度。

结果

参与者包括澳大利亚有烧伤瘢痕的成年人（n=23）和儿童（n=19）；有烧伤瘢痕儿童的照顾者（n=28）；以及国际瘢痕管理专家（n=14）。与其他烧伤瘢痕评估工具不同的项目被确定。开发了 4 种版本的 BBSIP：一种用于 8-18 岁儿童，一种用于成人，一种用于照顾者（作为 8 岁以下儿童的代理），一种用于 8-18 岁儿童的照顾者。BBSIP 的初步内容效度得到支持。最终项目涵盖了身体和感觉症状；情绪反应；对社会功能和日常活动的影响；治疗影响；以及环境因素。