布里斯班烧伤瘢痕影响量表（儿童和青少年版）用于测量烧伤瘢痕儿童的健康相关生活质量：一项可靠性、有效性和反应性的纵向队列研究。
The Brisbane Burn Scar Impact Profile (child and young person version) for measuring health-related quality of life in children with burn scars: A longitudinal cohort study of reliability, validity and responsiveness.
机构信息
Department of Occupational Therapy, Queensland Children's Hospital, 501 Stanley St, South Brisbane, Queensland 4101, Australia; Centre for Burns and Trauma Research, Child Health Research Centre, 62 Graham Street, South Brisbane, Queensland 4101, Australia.
Centre for Burns and Trauma Research, Child Health Research Centre, 62 Graham Street, South Brisbane, Queensland 4101, Australia; Department of Paediatric Surgery, Urology, Neonatal Surgery, Burns and Trauma, Queensland Children's Hospital, South Brisbane, Queensland 4101, Australia; Faculty of Medicine, The University of Queensland, St Lucia, Queensland 4067, Australia; Faculty of Health, Queensland University of Technology, Kelvin Grove, Queensland 4059, Australia.
出版信息
Burns. 2019 Nov;45(7):1537-1552. doi: 10.1016/j.burns.2019.07.012. Epub 2019 Aug 3.
BACKGROUND
Clinical practice benefits from the measurement of health-related quality of life (HRQoL) to reflect the impact of the disease and treatments from the patient's lived experience. The Brisbane Burn Scar Impact Profile (child and young person version, BBSIP), developed in 2013, is a self-report measure of burn scar-specific HRQoL. The purpose of the study was to test reliability, validity and responsiveness of this measure for an evaluative purpose.
METHODS
Young people aged 8-18 years with burn scarring or at probable risk of burn scarring (defined as 14 days or longer to re-epithelialize) were included in a prospective, longitudinal cohort study. Data was collected at a paediatric burn centre at baseline (when ≥85% of the total body surface area re- epithelialized), then 1-2 weeks and 1-month post-baseline. Participants completed measures of HRQoL (BBSIP, Pediatric Quality of Life Inventory) and scar characteristics (Patient Observer Scar Assessment Scale) at each time-point.
RESULTS
Sixty-five participants completed the baseline testing. Forty-nine participants completed testing at 1-2 weeks post-baseline and thirty-two at 1-month post-baseline. Internal consistency of item groups ranged from Cronbach's α 0.60 (frequency of sensory symptoms) to 0.90 (emotional reactions). All item groups expected to be stable had acceptable test-retest reliability (ICC = 0.71-0.83), except 'mobility' and 'friendships and social interaction' (ICC = 0.52 and 0.45). Construct validity was supported with 10 of 13 (77%) hypothesised correlations of change in the BBSIP items corresponding with changes in external criterion measures. The responsiveness of 8 out of 10 item groups tested against an external criterion was supported (AUC = 0.71-0.92).
CONCLUSION
The BBSIP has acceptable reliability, validity and responsiveness supporting its use as an evaluative self-report measure of burn scar-specific HRQoL in the early post-acute phase after burn injury.
背景
临床实践得益于健康相关生活质量（HRQoL）的测量，以从患者的生活体验反映疾病和治疗的影响。2013 年开发的布里斯班烧伤疤痕影响量表（儿童和青少年版，BBSIP）是一种烧伤疤痕特异性 HRQoL 的自我报告测量工具。本研究的目的是测试该测量工具的可靠性、有效性和反应性，以便进行评估。
方法
患有烧伤疤痕或有烧伤疤痕风险（定义为 14 天或更长时间重新上皮化）的 8-18 岁的年轻人被纳入一项前瞻性纵向队列研究。在基线时（当≥85%的总体表面积重新上皮化时）、1-2 周和基线后 1 个月，在儿科烧伤中心收集数据。参与者在每个时间点完成 HRQoL 测量（BBSIP、儿科生活质量清单）和疤痕特征（患者观察疤痕评估量表）。
结果
65 名参与者完成了基线测试。49 名参与者在基线后 1-2 周完成了测试，32 名参与者在基线后 1 个月完成了测试。项目组的内部一致性范围从 Cronbach's α 0.60（感觉症状的频率）到 0.90（情绪反应）。所有预计稳定的项目组都具有可接受的测试-重测信度（ICC=0.71-0.83），除了“移动性”和“友谊和社会互动”（ICC=0.52 和 0.45）。13 个假设的变化中，有 10 个与外部标准测量值的变化相对应，支持结构效度。8 个测试项目组对外部标准的反应性得到支持（AUC=0.71-0.92）。
结论
BBSIP 具有可接受的可靠性、有效性和反应性，支持将其用作烧伤后急性后期烧伤疤痕特异性 HRQoL 的评估性自我报告测量工具。
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