Wasson Katherine, Anderson Emily, Hagstrom Erika, McCarthy Michael, Parsi Kayhan, Kuczewski Mark
The Neiswanger Institute for Bioethics, Loyola University Chicago Stritch School of Medicine, 2160 S. 1st Avenue, Bldg. 120, Room 280, Maywood, IL, 60153, USA.
The Neiswanger Institute for Bioethics, Loyola University Chicago Stritch School of Medicine, 2160 S. 1st Ave., Bldg. 120, Rm. 284, Maywood, IL, 60153, USA.
HEC Forum. 2016 Sep;28(3):217-28. doi: 10.1007/s10730-015-9293-5.
As the field of clinical ethics consultation sets standards and moves forward with the Quality Attestation process, questions should be raised about what ethical issues really do arise in practice. There is limited data on the type and number of ethics consultations conducted across different settings. At Loyola University Medical Center, we conducted a retrospective review of our ethics consultations from 2008 through 2013. One hundred fifty-six cases met the eligibility criteria. We analyzed demographic data on these patients and conducted a content analysis of the ethics consultation write-ups coding both the frequency of ethical issues and most significant, or key, ethical issue per case. Patients for whom ethics consultation was requested were typically male (55.8 %), white (57.1 %), between 50 and 69 years old (38.5 %), of non-Hispanic origin (85.9 %), and of Roman Catholic faith (43.6 %). Nearly half (47.4 %) were in the intensive care unit and 44.2 % died in the hospital. The most frequent broad ethical categories were decision-making (93.6 %), goals of care/treatment (80.8 %), and end-of-life (73.1 %). More specifically, capacity (57.1 %), patient's wishes/autonomy (54.5 %), and surrogate decision maker (51.3 %) were the most frequent particular ethical issues. The most common key ethical issues were withdrawing/withholding treatment (12.8 %), patient wishes/autonomy (12.2 %), and capacity (11.5 %). Our findings provide additional data to inform the training of clinical ethics consultants regarding the ethical issues that arise in practice. A wider research agenda should be formed to collect and compare data across institutions to improve education and training in our field.
随着临床伦理咨询领域制定标准并推进质量认证进程,人们应当对实践中真正出现的伦理问题提出疑问。关于在不同环境下进行的伦理咨询的类型和数量,数据有限。在洛约拉大学医学中心,我们对2008年至2013年期间的伦理咨询进行了回顾性研究。156个案例符合入选标准。我们分析了这些患者的人口统计学数据,并对伦理咨询记录进行了内容分析,对每个案例的伦理问题出现频率以及最重要或关键的伦理问题进行编码。请求进行伦理咨询的患者通常为男性(55.8%)、白人(57.1%)、年龄在50至69岁之间(38.5%)、非西班牙裔(85.9%)、罗马天主教徒(43.6%)。近一半(47.4%)的患者在重症监护病房,44.2%的患者在医院死亡。最常见的宽泛伦理类别是决策(93.6%)、护理/治疗目标(80.8%)和生命末期(73.1%)。更具体地说,能力(57.1%)、患者意愿/自主权(54.5%)和替代决策者(51.3%)是最常见的具体伦理问题。最常见的关键伦理问题是停止/ withholding治疗(12.8%)、患者意愿/自主权(12.2%)和能力(11.5%)。我们的研究结果提供了更多数据,可为临床伦理顾问在实践中出现的伦理问题方面的培训提供参考。应该形成更广泛的研究议程,以收集和比较各机构的数据,从而改进我们领域的教育和培训。 (注:原文中withholding未翻译完整,推测可能是withholding treatment,完整翻译应为“停止/拒绝治疗” )