van Randeraad-van der Zee Carlijn H, Beurskens Anna J H M, Swinkels Raymond A H M, Pool Jan J M, Batterham Roy W, Osborne Richard H, de Vet Henrica C W
Department of Epidemiology and Biostatistics, EMGO+ Institute for Health and Care Research, VU University Medical Center, Boelelaan 1089A, 1081 HV, Amsterdam, The Netherlands.
Centre of Research Autonomy and Participation for Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, The Netherlands.
Qual Life Res. 2016 May;25(5):1219-25. doi: 10.1007/s11136-015-1149-6. Epub 2015 Oct 14.
To empirically define the concept of burden of neck pain. The lack of a clear understanding of this construct from the perspective of persons with neck pain and care providers hampers adequate measurement of this burden. An additional aim was to compare the conceptual model obtained with the frequently used Neck Disability Index (NDI).
Concept mapping, combining qualitative (nominal group technique and group consensus) and quantitative research methods (cluster analysis and multidimensional scaling), was applied to groups of persons with neck pain (n = 3) and professionals treating persons with neck pain (n = 2). Group members generated statements, which were organized into concept maps. Group members achieved consensus about the number and description of domains and the researchers then generated an overall mind map covering the full breadth of the burden of neck pain.
Concept mapping revealed 12 domains of burden of neck pain: impaired mobility neck, neck pain, fatigue/concentration, physical complaints, psychological aspects/consequences, activities of daily living, social participation, financial consequences, difficult to treat/difficult to diagnose, difference of opinion with care providers, incomprehension by social environment, and how person with neck pain deal with complaints. All ten items of the NDI could be linked to the mind map, but the NDI measures only part of the burden of neck pain.
This study revealed the relevant domains for the burden of neck pain from the viewpoints of persons with neck pain and their care providers. These results can guide the identification of existing measurements instruments for each domain or the development of new ones to measure the burden of neck pain.
通过实证来界定颈部疼痛负担的概念。从颈部疼痛患者和护理人员的角度来看，对这一概念缺乏清晰的理解阻碍了对这种负担的充分衡量。另一个目的是将获得的概念模型与常用的颈部残疾指数（NDI）进行比较。
概念映射结合了定性（名义小组技术和小组共识）和定量研究方法（聚类分析和多维尺度分析），应用于颈部疼痛患者组（n = 3）和治疗颈部疼痛患者的专业人员组（n = 2）。小组成员生成陈述，这些陈述被组织成概念图。小组成员就领域的数量和描述达成共识，然后研究人员生成一个涵盖颈部疼痛负担全范围的总体思维导图。
概念映射揭示了颈部疼痛负担的12个领域：颈部活动受限、颈部疼痛、疲劳/注意力不集中、身体不适、心理方面/后果、日常生活活动、社会参与、经济后果、难以治疗/难以诊断、与护理人员意见分歧、社会环境不理解以及颈部疼痛患者如何应对不适。NDI的所有十个项目都可以与思维导图相关联，但NDI仅测量了颈部疼痛负担的一部分。
本研究从颈部疼痛患者及其护理人员的角度揭示了颈部疼痛负担的相关领域。这些结果可以指导识别每个领域现有的测量工具或开发新的工具来测量颈部疼痛负担。
