Skin Centre for Dermatology, Peterborough, Ontario, Canada; Probity Medical Research, Waterloo, Ontario, Canada.
K. Papp Clinical Research, Waterloo, Ontario, Canada; Probity Medical Research, Waterloo, Ontario, Canada.
J Am Acad Dermatol. 2015 Nov;73(5 Suppl 1):S19-22. doi: 10.1016/j.jaad.2015.07.054.
Increasingly, quality of life data are being captured along with other measures to evaluate success in the treatment of numerous disease states. This is no less true in hidradenitis suppurativa (HS), an inflammatory condition that features multiple symptoms, including abscesses that can develop in multiple sites on the body, often in sensitive areas, that can be painful, can rupture, and can produce malodorous pus. The collection of baseline data with respect to the personal impact of HS is a necessary first step to determine if various interventions enhance the quality of life for patients with HS. While no particular tool provides sufficient insight about the psychosocial impairment that HS promotes, myriad instruments that have been used to measure the quality of life of HS patients have consistently shown that the disease has a substantial adverse impact on the physical, social, and emotional well-being of patients.
越来越多的生活质量数据与其他评估多种疾病治疗效果的指标一起被收集。在化脓性汗腺炎（HS）中也是如此，这是一种炎症性疾病，具有多种症状，包括可能在身体多个部位（通常是敏感部位）发展的脓肿，这些脓肿可能会疼痛、破裂，并产生恶臭的脓液。收集有关 HS 对个人影响的基线数据是确定各种干预措施是否能提高 HS 患者生活质量的必要第一步。虽然没有特定的工具能充分了解 HS 导致的心理社会障碍，但有很多已被用于测量 HS 患者生活质量的工具，这些工具一直表明，该疾病对患者的身体、社交和情感健康有重大的负面影响。
