Scollon Sarah, Bergstrom Katie, McCullough Laurence B, McGuire Amy L, Gutierrez Stephanie, Kerstein Robin, Parsons D Williams, Plon Sharon E
Board-certified genetic counselor at Baylor College of Medicine. She received her M.S. in Genetic Counseling from University of Michigan, Ann Arbor, MI.
Board certified genetic counselor at Baylor College of Medicine. She received her M.S. in Genetic Counseling from the University of Utah in Salt Lake City, UT.
J Law Med Ethics. 2015 Fall;43(3):529-37. doi: 10.1111/jlme.12295.
The return of genetic research results after death in the pediatric setting comes with unique complexities. Researchers must determine which results and through which processes results are returned. This paper discusses the experience over 15 years in pediatric cancer genetics research of returning research results after the death of a child and proposes a preventive ethics approach to protocol development in order to improve the quality of return of results in pediatric genomic settings.
儿科领域中在患儿死亡后返回基因研究结果有着独特的复杂性。研究人员必须确定返回哪些结果以及通过哪些流程来返回结果。本文讨论了15年来儿科癌症基因研究中在患儿死亡后返回研究结果的经验,并提出一种预防性伦理方法用于方案制定,以提高儿科基因组环境下结果返回的质量。