重构基于拉施模型构建的1型强直性肌营养不良症活动与参与量表。
Reconstructing the Rasch-Built Myotonic Dystrophy Type 1 Activity and Participation Scale.
作者信息
Hermans Mieke C E, Hoeijmakers Janneke G J, Faber Catharina G, Merkies Ingemar S J
机构信息
Department of Neurology, Maastricht University Medical Center, Maastricht, the Netherlands.
Department of Neurology, Maastricht University Medical Center, Maastricht, the Netherlands; Department of Neurology, Spaarne Hospital, Hoofddorp, The Netherlands.
出版信息
PLoS One. 2015 Oct 20;10(10):e0139944. doi: 10.1371/journal.pone.0139944. eCollection 2015.
INTRODUCTION
A previously published Rasch-built activity and participation scale specifically designed for patients with myotonic dystrophy type 1 (DM1) was criticized for having been constructed in a relatively small cohort of patients and containing items too broadly phrased for DM1 patients, thus hampering its clinical use.
METHODS
We report the results of the reconstructed Rasch-built DM1 activity and participation scale for clinical use (DM1-ActivC) through Rasch analyses using an expanded questionnaire containing 146 more simply phrased activity and participation inquiries completed by 340 patients with DM1.
RESULTS
Through stepwise investigation including data quality control, model fit, response category ordering, local dependency and item bias, we succeeded in reconstructing the DM1-ActivC consisting of 25 items that showed good Rasch model fit, including construct convergent validity, items' weights and persons' locations reliability, and unidimensionality.
CONCLUSION
The DM1-ActivC scale has been reconstructed and fulfills all modern clinimetric requirements. Its use is recommended in future longitudinal trials in patients with DM1 to determine its responsiveness.
引言
先前发表的一个专门为1型强直性肌营养不良症（DM1）患者构建的Rasch活动和参与量表受到批评，原因是该量表是在相对较小的患者队列中构建的，且包含的项目对DM1患者来说表述过于宽泛，从而妨碍了其临床应用。
方法
我们报告了通过Rasch分析重建的用于临床的Rasch构建的DM1活动和参与量表（DM1-ActivC）的结果，使用的是一份扩展问卷，其中包含由340名DM1患者完成的146项表述更简单的活动和参与询问。
结果
通过包括数据质量控制、模型拟合、反应类别排序、局部依赖性和项目偏差在内的逐步调查，我们成功重建了由25个项目组成的DM1-ActivC，该量表显示出良好的Rasch模型拟合，包括结构收敛效度、项目权重和人员位置可靠性以及单维度性。
结论
DM1-ActivC量表已被重建并满足所有现代临床测量学要求。建议在未来针对DM1患者的纵向试验中使用该量表，以确定其反应性。
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