Lauck Sandra B, Baumbusch Jennifer, Achtem Leslie, Forman Jacqueline M, Carroll Sandra L, Cheung Anson, Ye Jian, Wood David A, Webb John G
Centre for Heart Valve Innovation, St Paul's Hospital, Canada
University of British Columbia, Canada.
Eur J Cardiovasc Nurs. 2016 Dec;15(7):486-494. doi: 10.1177/1474515115612927. Epub 2015 Oct 23.
Transcatheter aortic valve implantation (TAVI) is the recommended therapy for patients with severe symptomatic aortic stenosis at increased surgical risk and likely to derive benefit. Multimodality and multidisciplinary assessment is required for the heart team to determine eligibility for TAVI in a primarily older population. Little is known about patients' motivation and perspectives on making the decision to undergo the complex assessment.
To explore factors influencing patients' decision making to undergo TAVI eligibility assessment to inform practice, programme development, health policy and future research.
An exploratory qualitative approach was used. Semistructured interviews were conducted with 15 patients at the time of their referral for assessment to a quaternary cardiac and high volume TAVI centre.
Multiple, intersecting factors that included biomedical, functional, social and environmental considerations influenced patients' decision. The six distinct factors were symptom burden, participants' perception as 'experienced' patients, expectations of benefit and risks, healthcare system and informal support, logistical barriers and facilitators, and obligations and responsibilities.
The decision to undergo TAVI eligibility assessment is multifaceted and complex. Programmatic processes of care must be in place to facilitate appropriate and patient-centered decision making and access to TAVI. Strategies are required to mitigate the risks associated with the rapid deterioration of severe aortic stenosis, address patient and referring physicians' education needs, and provide individualised care and equitable access. Future research must focus on patients' experiences throughout the trajectory of TAVI care.
经导管主动脉瓣植入术(TAVI)是手术风险增加但可能获益的重度有症状主动脉瓣狭窄患者的推荐治疗方法。心脏团队需要进行多模式和多学科评估,以确定主要为老年人群中TAVI的适用性。关于患者接受复杂评估决策的动机和观点知之甚少。
探讨影响患者接受TAVI适用性评估决策的因素,为实践、项目开发、卫生政策和未来研究提供信息。
采用探索性定性方法。在15名患者被转诊至四级心脏和大容量TAVI中心进行评估时,对他们进行了半结构化访谈。
包括生物医学、功能、社会和环境因素在内的多个相互交叉的因素影响了患者的决策。六个不同的因素是症状负担、参与者作为“有经验”患者的认知、对获益和风险的期望、医疗系统和非正式支持、后勤障碍和促进因素,以及义务和责任。
接受TAVI适用性评估的决策是多方面且复杂的。必须建立程序化的护理流程,以促进以患者为中心的适当决策和获得TAVI的机会。需要采取策略来降低与严重主动脉瓣狭窄快速恶化相关的风险,满足患者和转诊医生的教育需求,并提供个性化护理和平等的获得机会。未来的研究必须关注患者在TAVI护理全过程中的体验。