Vindrola-Padros Cecilia, Taylor Rachel M, Lea Sarah, Hooker Louise, Pearce Susie, Whelan Jeremy, Gibson Faith
Author Affiliations: Department of Applied Health Research, University College London (Dr Vindrola-Padros); Cancer Clinical Trials Unit (Dr Taylor and Ms Pearce) and The London Sarcoma Service (Dr Whelan), University College London Hospital NHS Foundation Trust; and Department of Children's Nursing, London South Bank University (Drs Gibson and Taylor and Ms Lea), London; Teenage and Young Adult Cancer Service, University Hospital Southampton NHS Foundation Trust, Southampton (Ms Hooker); and Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS Foundation Trust, London (Dr Gibson), United Kingdom.
Cancer Nurs. 2016 Sep-Oct;39(5):358-66. doi: 10.1097/NCC.0000000000000315.
Specialized cancer services for adolescents and young adults (AYAs) are being developed in a number of countries to address the particular needs of this population. However, the evidence base to inform service design and associated care delivery is inadequate.
The aim of this study was to undertake a mapping study to identify the main components of AYA cancer care to be studied further to reflect the range of approaches to service delivery currently provided in England.
Semistructured interviews were conducted with young people, their family members, and staff in 11 AYA principal treatment centers. Using different levels of extraction, these data were drawn together to illuminate the main components of AYA cancer care and the range of approaches to service delivery.
Young people, family members, and staff consistently identified and valued similar areas of AYA cancer care: caring and supportive staff, activities designed for AYAs, and an environment that feels like home.
The mapping exercise successfully informed the selection of 4 sites for an in-depth case study. The main components of specialized AYA care have been described.
This description can assist clinical teams interested in developing or refining their approach to AYA cancer care. It could also offer a way to agree priorities, based on the key components young people consider as being essential for their care, and facilitate services to benchmark against these key components, and it could also go some way to address international AYA goals to support global change to reduce the current disparities in care.
许多国家正在为青少年和青年成年人（AYA）开发专门的癌症服务，以满足这一人群的特殊需求。然而，为服务设计和相关护理提供提供依据的证据基础并不充分。
本研究的目的是进行一项映射研究，以确定AYA癌症护理的主要组成部分，以便进一步研究，以反映英国目前提供的服务提供方式的范围。
对11个AYA主要治疗中心的年轻人、他们的家庭成员和工作人员进行了半结构化访谈。通过不同层次的提取，将这些数据汇总在一起，以阐明AYA癌症护理的主要组成部分和服务提供方式的范围。
年轻人、家庭成员和工作人员一致确定并重视AYA癌症护理的类似领域：关爱和支持性的工作人员、为AYA设计的活动以及像家一样的环境。
映射练习成功地为深入案例研究的4个地点的选择提供了信息。描述了专门的AYA护理的主要组成部分。
这一描述可以帮助有兴趣开发或完善其AYA癌症护理方法的临床团队。它还可以提供一种基于年轻人认为对其护理至关重要的关键组成部分来确定优先事项的方法，并促进服务对照这些关键组成部分进行基准测试，并且它还可以在一定程度上实现国际AYA目标，以支持全球变革，减少目前护理方面的差距。
