Taylor Rachel M, Pollitt Alexandra, Lawson Gabriel, Pow Ross, Hough Rachael, Soanes Louise, Riley Amy, Lawal Maria, Fern Lorna A
Department of Targeted Intervention, University College London, London WC1E 6BT, UK.
Centre for Nurse, Midwife and Allied Health Profession Led Research (CNMAR), University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK.
Healthcare (Basel). 2025 Jul 26;13(15):1821. doi: 10.3390/healthcare13151821.
BRIGHTLIGHT was the national evaluation of adolescent and young adult (AYA) cancer services in England. BRIGHTLIGHT results were not available when the most recent healthcare policy (NHSE service specifications for AYA Cancer) for AYA was drafted and therefore did not consider BRIGHTLIGHT findings and recommendations. We describe the co-development and delivery of a Policy Lab to expedite the implementation of the new service specification in the context of BRIGHTLIGHT results, examining the roles of multi-stakeholders to ensure service delivery is optimised to benefit AYA patients. We address the key question, "What is the roadmap for empowering different stakeholders to shape how the AYA service specifications are implemented?". A 1-day face-to-face policy lab was facilitated, utilising a unique, user-centric engagement approach by bringing diverse AYA stakeholders together to co-design strategies to translate BRIGHTLIGHT evidence into policy and impact. This was accompanied by an online workshop and prioritisation survey, individual interviews, and an AYA patient workshop. Workshop outputs were analysed thematically and survey data quantitatively. Eighteen professionals and five AYAs attended the face-to-face Policy Lab, 16 surveys were completed, 13 attended the online workshop, three professionals were interviewed, and three AYAs attended the patient workshop. The Policy Lab generated eight national and six local recommendations, which were prioritised into three national priorities: 1. Launching the service specification supported by compelling communication; 2. Harnessing the ideas of young people; and 3. Evaluation of AYA patient outcomes/experiences and establishing a national dashboard of AYA cancer network performance. An animation was created by AYAs to inform local hospitals what matters to them most in the service specification. Policy and research evidence are not always aligned, so when emerging evidence does not support current guidance, further exploration is required. We have shown through multi-stakeholder involvement including young people that it was possible to gain a different interpretation based on current knowledge and context. This additional insight enabled practical recommendations to be identified to support the implementation of the service specification.
“光明计划”是对英格兰青少年及青年成人（AYA）癌症服务的全国性评估。在起草最新的AYA医疗保健政策（NHSE的AYA癌症服务规范）时，“光明计划”的结果尚未可得，因此该政策未考虑“光明计划”的调查结果和建议。我们描述了一个政策实验室的共同开发与实施情况，该实验室旨在结合“光明计划”的结果，加快新服务规范的实施，研究多方利益相关者的作用，以确保服务的提供得到优化，从而使AYA患者受益。我们解决了关键问题：“赋予不同利益相关者权力以塑造AYA服务规范实施方式的路线图是什么？” 我们组织了一次为期一天的面对面政策实验室活动，采用独特的、以用户为中心的参与方式，将不同的AYA利益相关者聚集在一起，共同设计将“光明计划”的证据转化为政策和影响的策略。同时还举办了一次在线研讨会和优先级调查、个人访谈以及一次AYA患者研讨会。对研讨会的产出进行了主题分析，对调查数据进行了定量分析。18名专业人员和5名AYA参加了面对面政策实验室，完成了16份调查问卷，13人参加了在线研讨会，采访了3名专业人员，3名AYA参加了患者研讨会。政策实验室提出了8项全国性建议和6项地方性建议，并将其优先排序为3项全国性优先事项：1. 在有力宣传的支持下推出服务规范；2. 利用年轻人的想法；3. 评估AYA患者的治疗结果/体验，并建立AYA癌症网络绩效的全国仪表盘。AYA制作了一个动画，向当地医院说明在服务规范中对他们最重要的事项。政策和研究证据并不总是一致的，因此当新出现的证据不支持当前指导意见时，就需要进一步探索。我们通过包括年轻人在内的多方利益相关者参与表明，基于当前的知识和背景有可能获得不同的解读。这种额外的见解使得能够确定切实可行的建议，以支持服务规范的实施。
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