英国年轻人对癌症护理的看法：BRIGHTLIGHT 队列研究。
Young people's opinions of cancer care in England: the BRIGHTLIGHT cohort.
机构信息
Cancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London, London, UK.
Cancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London, London, UK
出版信息
BMJ Open. 2023 Sep 20;13(9):e069910. doi: 10.1136/bmjopen-2022-069910.
OBJECTIVES
The BRIGHTLIGHT cohort study was the national evaluation of cancer services for teenager and young adults (TYA). This was analysis of free-text survey data to better understand their experiences of cancer care.
DESIGN
Cohort study SETTING: National Health Service hospitals delivering cancer care in England PARTICIPANTS: 830 young people newly diagnosed with cancer.
INTERVENTIONS
Exposure to specialist care in the first 6 months after diagnosis defined as care in a TYA Principal Treatment Centre (PTC). This was categorised as follows: all care in a TYA-PTC (ALL-TYA-PTC), no care in a TYA-PTC (NO-TYA-PTC) so care delivered in a children/adult unit only and some care in a TYA-PTC with additional care in a children's/adult unit (SOME-TYA-PTC).
PRIMARY OUTCOME
Data were collected through the BRIGHTLIGHT survey included free-text questions which asked patients 'what was the best aspects of their experiences of care' and 'what aspects could be improved'. These comments were analysed using content analysis. Themes were compared between categories of care, then ranked in order of frequency, ranging from the most endorsed to the least.
RESULTS
Overall, young people were most positive about their healthcare team, while the area highlighted for improvement was diagnostic experience. Differences between the three groups suggested those who had some or all treatment in a TYA-PTC valued the place of care. Regardless of where TYA were treated their healthcare teams were favourably viewed. Age appropriate place of care was highlighted to be of value for those in PTCs.
CONCLUSIONS
These data show the value young people placed on the care they received in TYA specific wards. Young people who accessed some or all of their care in a TYA-PTC highly endorsed their place of care as one of the best elements of their care, and it is further emphasised by those who had shared care who experienced difficulty with lack of age-appropriate care when treated outside the TYA-PTC.
目的
BRIGHTLIGHT 队列研究是对青少年和年轻成人（TYA）癌症服务的全国性评估。这是对自由文本调查数据的分析，以更好地了解他们的癌症护理体验。
设计
队列研究
设置
在英格兰提供癌症护理的国民保健服务医院
参与者
830 名新诊断患有癌症的年轻人。
干预措施
在诊断后 6 个月内接受专科护理的暴露情况定义为在 TYA 主要治疗中心（PTC）接受护理。这分为以下几类：在 TYA-PTC 接受所有护理（ALL-TYA-PTC）、不在 TYA-PTC 接受护理（NO-TYA-PTC），仅在儿童/成人单位接受护理，以及在 TYA-PTC 接受部分护理，并在儿童/成人单位接受额外护理（SOME-TYA-PTC）。
主要结果
数据通过 BRIGHTLIGHT 调查收集，其中包括自由文本问题，询问患者“他们护理体验中最好的方面是什么”和“哪些方面可以改进”。这些评论使用内容分析进行分析。对护理类别之间的主题进行了比较，然后按频率从最高到最低进行了排序。
结果
总体而言，年轻人对他们的医疗团队最满意，而改进的重点是诊断经验。三组之间的差异表明，在 TYA-PTC 接受部分或全部治疗的患者重视治疗场所。无论 TYA 在何处接受治疗，他们的医疗团队都受到好评。对于在 PTC 接受治疗的患者，年龄适当的治疗场所被认为是有价值的。
结论
这些数据显示了年轻人对 TYA 特定病房接受的护理的重视。在 TYA-PTC 接受部分或全部治疗的年轻人非常认可他们的治疗场所是他们护理的最佳元素之一，而那些接受共享护理并在 TYA-PTC 之外接受治疗时因缺乏年龄适当的护理而感到困难的人则进一步强调了这一点。
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