Duman-Lubberding S, van Uden-Kraan C F, Jansen F, Witte B I, van der Velden L A, Lacko M, Cuijpers P, Leemans C R, Verdonck-de Leeuw I M
Otolaryngology/Head and Neck Surgery, VU University Medical Center, Amsterdam, The Netherlands.
EMGO Institute for Health and Care Research, VU University and VU University Medical Center, Amsterdam, The Netherlands.
Support Care Cancer. 2016 May;24(5):2163-2171. doi: 10.1007/s00520-015-3004-2. Epub 2015 Nov 12.
The purpose of this study was to investigate the feasibility of an online self-management application (OncoKompas) among cancer survivors. In OncoKompas, cancer survivors can monitor their quality of life (QOL) via participant reported outcomes (PROs) ("Measure"), which is followed by automatically generated individually tailored feedback ("Learn") and personalized advice on supportive care services ("Act").
A pretest-posttest design was used, conducting a survey before providing access to OncoKompas, and 2 weeks after, followed by an interview by a nurse. Adoption was defined as the percentage of cancer survivors that agreed to participate in the study and returned the T0 questionnaire. Implementation was defined as the percentage of participants that actually used OncoKompas as intended (T1). General satisfaction was assessed based on the mean score of three study-specific questions: (1) general impression of OncoKompas, (2) the user-friendliness, and (3) the ability to use OncoKompas without assistance (10-point Likert scales). Furthermore, satisfaction was measured with the Net Promotor Scale (NPS).
OncoKompas was feasible with an adoption grade of 64 %, an implementation grade of 75-91 %, a mean satisfaction score of 7.3, and a positive NPS (1.9). Sociodemographic and clinical factors and QOL were not associated with satisfaction. Several facilitators and barriers related to the feasibility of OncoKompas were identified.
OncoKompas is considered feasible, but has to be further improved. In order to enhance feasibility and increase satisfaction, we have to balance the time it takes to use OncoKompas, measurement precision, and tailoring towards personalized advices.
本研究旨在调查在线自我管理应用程序(OncoKompas)在癌症幸存者中的可行性。在OncoKompas中,癌症幸存者可以通过参与者报告的结果(PROs)(“测量”)来监测他们的生活质量(QOL),随后会自动生成个性化的反馈(“学习”)以及关于支持性护理服务的个性化建议(“行动”)。
采用前测-后测设计,在提供OncoKompas访问权限之前进行一项调查,两周后再次进行调查,随后由一名护士进行访谈。采用率定义为同意参与研究并返回T0问卷的癌症幸存者的百分比。实施率定义为实际按预期使用OncoKompas的参与者的百分比(T1)。基于三个特定于研究的问题的平均得分评估总体满意度:(1)对OncoKompas的总体印象,(2)用户友好性,以及(3)在无协助情况下使用OncoKompas的能力(10分李克特量表)。此外,使用净促进者评分(NPS)来衡量满意度。
OncoKompas是可行的,采用率为64%,实施率为75%-91%,平均满意度得分为7.3,NPS为正值(1.9)。社会人口统计学和临床因素以及生活质量与满意度无关。确定了与OncoKompas可行性相关的几个促进因素和障碍。
OncoKompas被认为是可行的,但必须进一步改进。为了提高可行性并增加满意度,我们必须在使用OncoKompas所需的时间、测量精度以及针对个性化建议的定制之间取得平衡。