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美国多发性硬化症患者的就业问题:来自全国样本的观点。

The employment concerns of Americans with multiple sclerosis: Perspectives from a national sample.

作者信息

Rumrill Phillip D, Roessler Richard T, Li Jian, Daly Katherine, Leslie Mykal

机构信息

Center for Disability Studies, Kent State University, Kent, OH, USA.

Independent Rehabilitation Consultant, Fayetteville, AR, USA.

出版信息

Work. 2015;52(4):735-48. doi: 10.3233/WOR-152201.

Abstract

BACKGROUND

The recent rehabilitation literature does not include a thorough assessment of the employment concerns of people with MS.

OBJECTIVE

This article presents descriptive findings from a national survey of the employment concerns of Americans with multiple sclerosis (MS; N = 1,924), representing nine chapters of the National Multiple Sclerosis Society.

METHODS

Respondents were asked to evaluate 38 employment concerns items on two dimensions, importance and satisfaction, for the purpose of identifying strengths and weaknesses in the employment policies and practices affecting the labor force participation of people with MS.

RESULTS

Results revealed a total of 32 employment strengths and six employment weaknesses.

CONCLUSIONS

In spite of a jobless rate of more than 60 percent, people with MS were satisfied with the majority of employment concerns. Implications of these findings for rehabilitation policy and service delivery are examined.

摘要

背景

近期的康复文献并未对多发性硬化症患者的就业问题进行全面评估。

目的

本文呈现了一项针对美国多发性硬化症患者(N = 1924)就业问题的全国性调查的描述性结果,这些患者来自美国国家多发性硬化症协会的九个分会。

方法

为了确定影响多发性硬化症患者劳动力参与的就业政策和实践中的优势与不足,要求受访者从重要性和满意度两个维度对38项就业问题进行评估。

结果

结果显示共有32项就业优势和6项就业劣势。

结论

尽管失业率超过60%,多发性硬化症患者对大多数就业问题仍感到满意。本文探讨了这些结果对康复政策和服务提供的影响。

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