在儿童生命末期照顾患儿家庭。

Caring for Pediatric Patients' Families at the Child's End of Life.

作者信息

Mullen Jodi E, Reynolds Melissa R, Larson Jennifer S

机构信息

Jodi E. Mullen is a clinical leader, pediatric intensive care unit, University of Florida Health, Shands Children's Hospital, Gainesville, Florida.Melissa R. Reynolds is a nurse manager, pediatric intensive care unit, University of Florida Health, Shands Children's Hospital.Jennifer S. Larson is an advanced hospice and palliative social worker in pediatric hematology/oncology, University of Florida Health, Shands Children's Hospital.

出版信息

Crit Care Nurse. 2015 Dec;35(6):46-55; quiz 56. doi: 10.4037/ccn2015614.

DOI:10.4037/ccn2015614

PMID:26628545

Abstract

Nurses play an important role in supporting families who are faced with the critical illness and death of their child. Grieving families desire compassionate, sensitive care that respects their wishes and meets their needs. Families often wish to continue relationships and maintain lasting connections with hospital staff following their child's death. A structured bereavement program that supports families both at the end of their child's life and throughout their grief journey can meet this need.

摘要

护士在支持那些面临孩子重症和死亡的家庭方面发挥着重要作用。悲痛的家庭渴望得到富有同情心、体贴入微的护理，这种护理要尊重他们的意愿并满足他们的需求。孩子去世后，家庭通常希望能与医院工作人员继续保持关系并维持长久联系。一个结构化的哀伤辅导项目，在孩子生命末期及整个悲痛历程中为家庭提供支持，能够满足这一需求。