Voshaar M J H, Nota I, van de Laar M A F J, van den Bemt B J F
University of Twente, Enschede, The Netherlands.
University of Twente, Enschede, The Netherlands; Medisch Spectrum Twente, Enschede, The Netherlands.
Best Pract Res Clin Rheumatol. 2015 Aug-Dec;29(4-5):643-63. doi: 10.1016/j.berh.2015.09.007. Epub 2015 Oct 29.
Review of the evidence on patient-centred care (PCC) in rheumatoid arthritis (RA) shows that involving the patient as an individual - with unique needs, concerns and preferences - has a relevant impact on treatment outcomes (safety, effectiveness and costs). This approach empowers patients to take personal responsibility for their treatment. Because clinicians are only able to interact personally with their patients just a few hours per year, patients with a chronic condition such as RA should be actively involved in the management of their disease. To stimulate this active role, five different PCC activities can be distinguished: (1) patient education, (2) patient involvement/shared decision-making, (3) patient empowerment/self-management, (4) involvement of family and friends and (5) physical and emotional support. This article reviews the existing knowledge on these five PCC activities in the context of established RA management, especially focused on opportunities to increase medication adherence in established RA.
对类风湿性关节炎(RA)以患者为中心的护理(PCC)证据的综述表明,将患者作为个体(具有独特的需求、关注点和偏好)纳入其中,会对治疗结果(安全性、有效性和成本)产生重大影响。这种方法使患者能够对自己的治疗承担个人责任。由于临床医生每年只能与患者进行几个小时的个人互动,患有类风湿性关节炎等慢性病的患者应积极参与其疾病的管理。为了促进这种积极作用,可以区分出五种不同的以患者为中心的护理活动:(1)患者教育,(2)患者参与/共同决策,(3)患者赋权/自我管理,(第4)家人和朋友的参与,以及(5)身体和情感支持。本文在已确立的类风湿性关节炎管理背景下,综述了关于这五种以患者为中心的护理活动的现有知识,特别关注在已确立的类风湿性关节炎中提高药物依从性的机会。