SOM Tech, School of Medicine, University of California San Francisco, 654 Minnesota St, San Francisco, CA, 94107, United States.
Division of Rheumatology, University of California San Francisco, San Francisco, CA, United States.
Patient Educ Couns. 2019 Mar;102(3):503-510. doi: 10.1016/j.pec.2018.10.016. Epub 2018 Oct 28.
Use of patient reported outcomes (PROs) in the routine care of rheumatoid arthritis (RA) has been shown to improve health outcomes, However, integration of PROs into the clinical visit is inconsistent. We aimed to develop a "dashboard" for RA patients to display relevant PRO measures for discussion during a routine RA clinical visit.
Patients (N = 45) and providers (N = 12) were recruited from rheumatology clinics at a university center and a safety net hospital. Using a human-centered design process involving patients, clinicians, designers, and health-IT experts, we performed interviews, clinic observations, and focus groups, which subsequently guided an iterative phase of prototype testing.
RA patients and their providers shared the goals of assessing wellbeing and developing a personalized treatment plan. We found conflicting views of which data were most important for guiding decision-making and for answering the patient's overarching question of "Am I OK?"
The final dashboard simplified the display of PRO data and correlated it longitudinally to the patient's medication regimen. It also included laboratory values relevant for RA care.
By presenting data graphically, the dashboard may provide a platform for patients and providers to communicate around PROs and shared goals.
在类风湿关节炎（RA）的常规护理中使用患者报告的结果（PROs）已被证明可以改善健康结果，然而，PROs 整合到临床就诊中的情况并不一致。我们旨在为 RA 患者开发一个“仪表盘”，以便在常规 RA 临床就诊中讨论相关的 PRO 措施。
从一所大学中心和一家安全网医院的风湿病诊所招募了患者（N=45）和提供者（N=12）。我们采用以人为中心的设计过程，涉及患者、临床医生、设计师和健康信息技术专家，进行了访谈、诊所观察和焦点小组，随后指导了原型测试的迭代阶段。
RA 患者及其提供者都希望评估整体健康状况并制定个性化的治疗计划。我们发现，对于哪些数据对于指导决策以及回答患者的总体问题“我还好吗？”，存在不同的看法。
最终的仪表盘简化了 PRO 数据的显示，并将其与患者的药物治疗方案进行了纵向关联。它还包括了与 RA 护理相关的实验室值。
通过以图形方式呈现数据，仪表盘可以为患者和提供者提供一个围绕 PROs 和共同目标进行沟通的平台。
