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[《肝病患者生活质量简表》西班牙语版本的前瞻性验证]

[Prospective validation of the Spanish version of the Short Form-Liver Disease Quality of life].

作者信息

Casanovas Taltavull Teresa, Chandía Frías Alejandra, Vilallonga Vilarmau Joan-Salvador, Peña-Cala María Carmen, de la Iglesia Vicario Inés, Herdman Michael

机构信息

Hepatóloga, Programa asistencial de hepatitis crónicas, Unidad de Trasplante Hepático, Hospital Universitari de Bellvitge, Hospital Universitari de Bellvitge, L'Hospitalet de Llobregat, España.

Psicóloga investigadora, Institut d'Investigació Biomèdica de Bellvitge (IDIBELL), Hospital Universitari de Bellvitge, L'Hospitalet de Llobregat, España.

出版信息

Gastroenterol Hepatol. 2016 Apr;39(4):243-54. doi: 10.1016/j.gastrohep.2015.08.001. Epub 2015 Dec 19.

Abstract

UNLABELLED

Health-Related Quality of Life (HRQL) assessed by a specific, validated, brief test is an important measure of the health status perceived by patients diagnosed with chronic liver disease.

AIM

To prospectively validate the SF-LDQOL (Short Form-Liver Disease Quality of Life) instrument in Spanish, in patients diagnosed with liver disease of diverse etiologies and distinct severity levels, attended at the Hospital Universitari de Bellvitge (Barcelona).

METHODS

This observational, longitudinal study was conducted by using the SF-LDQOL in outpatients diagnosed with chronic liver disease. This instrument contains the generic SF-36 test, and 9 liver disease-specific dimensions. We also evaluated socio-demographic features, the number of missing responses, and internal consistency (Cronbach's alpha), as well as Pearson's correlation between SF-36 and SF-LDQOL scores on specific dimensions by means of a multi-trait multi-method technique. The sample consisted of 340 patients.

RESULTS

In 6 out of 9 liver disease-specific dimensions, reliability coefficients for internal consistency exceeded 0.70. The convergent validity of these items was acceptable in 8 out of 9 dimensions, with a scaling success of 100% in each item. Missing items were under 1.5% in all dimensions, except for Sexual Functioning.

CONCLUSIONS

The Spanish version of the SF-LDQOL has, in general, good psychometric properties, making it a useful instrument for clinical practice in a population of patients diagnosed with chronic liver disease, with or without liver transplantation.

摘要

未标注

通过一项特定的、经过验证的简短测试评估的健康相关生活质量(HRQL)是诊断为慢性肝病的患者所感知的健康状况的重要衡量指标。

目的

前瞻性验证西班牙语版的SF-LDQOL(简短形式-肝病生活质量)工具,用于巴塞罗那贝尔维特大学医院就诊的、病因多样且严重程度不同的肝病患者。

方法

本观察性纵向研究对诊断为慢性肝病的门诊患者使用SF-LDQOL。该工具包含通用的SF-36测试以及9个肝病特定维度。我们还评估了社会人口学特征、缺失回答的数量和内部一致性(克朗巴哈系数),以及通过多特质多方法技术在特定维度上SF-36和SF-LDQOL得分之间的皮尔逊相关性。样本包括340名患者。

结果

在9个肝病特定维度中的6个维度,内部一致性的信度系数超过0.70。这些项目在9个维度中的8个维度的收敛效度是可接受的,每个项目的量表成功度为100%。除性功能维度外,所有维度的缺失项目均低于1.5%。

结论

西班牙语版的SF-LDQOL总体上具有良好的心理测量特性,使其成为诊断为慢性肝病的患者群体(无论是否进行肝移植)临床实践中的有用工具。

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