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美国东南部三个县的非裔美国人的结核病知识、意识和污名:社区观点的定性研究。

Tuberculosis Knowledge, Awareness, and Stigma Among African-Americans in Three Southeastern Counties in the USA: a Qualitative Study of Community Perspectives.

机构信息

RTI International, Durham, NC, USA.

ICAP, Mailman School of Public Health, Columbia University, New York, NY, USA.

出版信息

J Racial Ethn Health Disparities. 2017 Feb;4(1):47-58. doi: 10.1007/s40615-015-0200-1. Epub 2015 Dec 29.

Abstract

To inform strategies to address the tuberculosis (TB) excess among US-born African-Americans, we sought to understand the TB experience in the most highly affected southeastern communities. We conducted semi-structured interviews and focus groups in three communities with a TB excess-urban (Georgia and Tennessee) and rural (North Carolina). Participants from five groups provided diverse perspectives-African-Americans: patients with TB disease or latent TB infection (LTBI), or at high risk of contracting TB; and local community leaders and TB program staff. Few differences emerged between sites. Many participants demonstrated low levels of knowledge and awareness and held many misconceptions about TB. Patients expressed a preference for verbal communication of medical information. Patients reported fear of stigmatization and shunning, but few experienced discrimination. Patient trust for TB program staff was high, though community leaders often assumed the opposite. The findings will help guide interventions to improve knowledge and awareness regarding TB, including specific attention to the role of public and private health care providers in dispelling persistent misinformation about TB. The insight from these communities will help build the scientific foundation required to effectively eliminate health inequities.

摘要

为了制定针对美国出生的非裔美国人结核病(TB)高发的应对策略,我们希望深入了解受影响最严重的东南部社区的 TB 经历。我们在三个具有 TB 高发地区(佐治亚州和田纳西州的城市地区和北卡罗来纳州的农村地区)进行了半结构化访谈和焦点小组讨论。五个群体的参与者提供了不同的观点:非裔美国人:患有结核病或潜伏性结核病感染(LTBI),或有较高感染结核病风险的患者;以及当地社区领导人和结核病项目工作人员。各个地点之间几乎没有差异。许多参与者对结核病的知识和认识水平较低,并且存在许多误解。患者表示希望以口头方式传达医疗信息。患者报告了对污名化和回避的恐惧,但很少有人经历过歧视。患者对结核病项目工作人员的信任度很高,尽管社区领导经常持相反的看法。这些发现将有助于指导干预措施,以提高对结核病的认识和了解,包括特别关注公共和私人医疗保健提供者在消除有关结核病的持续误解方面的作用。这些社区的见解将有助于建立有效消除健康不平等所需的科学基础。

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