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类风湿关节炎患者的气候关怀体验。

Rheumatoid arthritis patients' experience of climate care.

作者信息

Vaks Katrin, Sjöström Rita

机构信息

Department of Sports Science, Linnaeus University, Kalmar/Växjö, Sweden.

Region Jämtland Härjedalen, Unit of Research, Education, and Development, Östersund, Sweden.

出版信息

J Exerc Rehabil. 2015 Dec 31;11(6):337-44. doi: 10.12965/jer.150228. eCollection 2015 Dec.

Abstract

The purpose of this qualitative study was to understand and examine how patients with rheumatoid arthritis (RA) experience climate care and its effects. A qualitative approach was chosen for the study. Two men and six women were interviewed according to a semistructured interview guide. The text was analyzed using a manifest content analysis. The analysis resulted in four categories and 10 subcategories. The interviewees experienced climate care positively. The training was perceived increasing gradually. The patients felt that they performed to a maximum capacity during training and were impressed by the staff's enthusiasm and encouragement. The patients felt that they were involved in the goal setting and the choice of treatment, and the staff noticed individual needs. There was a feeling among the patients of being acknowledged by the staff. Information about the disease was perceived as individualized. The climate and beautiful surroundings were viewed as encouraging physical activity and a feeling of well-being. Patients made new friends, had fun together and also shared experiences about their disease. Furthermore, the patients described a sense of belonging to a group as well as a feeling of not being the only one that was sick among the healthy. Not having to do everyday tasks and having time to themselves were perceived positively. Several factors contributed to the positive experiences of climate care; climate, environment, physical activity, social context, staff involvement, and information about the disease were described as interacting together and resulting in a sense of well-being. A proposal for future research would be to examine if/how the various factors might interact and affect the RA patients' illness and quality of life.

摘要

这项定性研究的目的是了解和考察类风湿性关节炎(RA)患者如何体验气候护理及其效果。该研究采用了定性研究方法。根据半结构化访谈指南,对两名男性和六名女性进行了访谈。使用显性内容分析法对文本进行了分析。分析结果产生了四个类别和十个子类别。受访者对气候护理有积极的体验。他们感觉到训练在逐渐增加。患者觉得他们在训练中发挥了最大能力,并对工作人员的热情和鼓励印象深刻。患者觉得他们参与了目标设定和治疗选择,而且工作人员注意到了他们的个人需求。患者有一种被工作人员认可的感觉。关于疾病的信息被认为是个性化的。气候和优美的环境被视为有助于促进体育活动和带来幸福感。患者结交了新朋友,一起玩乐,还分享了他们的疾病经历。此外,患者描述了一种归属感,以及感觉自己不是健康人群中唯一患病的人。不必做日常琐事并有属于自己的时间被视为是积极的。有几个因素促成了对气候护理的积极体验;气候、环境、体育活动、社会环境、工作人员的参与以及关于疾病的信息被描述为相互作用,从而带来一种幸福感。对未来研究的一个建议是考察各种因素是否/如何相互作用并影响类风湿性关节炎患者的病情和生活质量。

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本文引用的文献

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Rheumatoid arthritis.类风湿关节炎。
Lancet. 2010 Sep 25;376(9746):1094-108. doi: 10.1016/S0140-6736(10)60826-4.

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