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环境障碍是否会影响脑瘫儿童和青少年家长报告的生活质量?

Do environmental barriers affect the parent-reported quality of life of children and adolescents with cerebral palsy?

作者信息

Badia Marta, Begoña Orgaz M, Gómez-Vela María, Verdugo Miguel A, Ullán Ana M, Longo Egmar

机构信息

Institute on Community Integration (INICO), Faculty of Psychology, University of Salamanca, Salamanca, Spain.

Faculty of Psychology, University of Salamanca, Salamanca, Spain.

出版信息

Res Dev Disabil. 2016 Feb-Mar;49-50:312-21. doi: 10.1016/j.ridd.2015.12.011. Epub 2016 Jan 11.

Abstract

Physical, social, and attitudinal environment may affect the quality of life (QoL) of children and adolescents with cerebral palsy (CP). Participants in this study included parents of 206 children and adolescents with CP (55.8% males) aged 8-18 years (M=11.96, SD=3). Distribution according to the Gross Motor Function Classification System (GMFCS) was 24.3% level I, 18% level II, 18% level III, 12.6% level IV, and 27.2 level V. Environmental barriers were assessed with the Spanish version of the European Child Environment Questionnaire (ECEQ), and QoL was assessed with the KIDSCREEN parents' version. The results of the correlation analysis revealed that GMFCS level, IQ, and type of schooling are significantly correlated with QoL. Barriers were also associated with QoL. A series of hierarchical regression analyses indicated that, after controlling for the effect of child and parent's variables, barriers at home and at school significantly contribute to QoL. These findings underscore the importance of providing interventions to produce environmental changes that contribute to the improvement of QoL.

摘要

身体、社会和态度环境可能会影响脑瘫(CP)儿童和青少年的生活质量(QoL)。本研究的参与者包括206名8至18岁脑瘫儿童和青少年的父母(男性占55.8%)(平均年龄M = 11.96,标准差SD = 3)。根据粗大运动功能分类系统(GMFCS)的分布情况为:I级占24.3%,II级占18%,III级占18%,IV级占12.6%,V级占27.2%。使用欧洲儿童环境问卷(ECEQ)的西班牙语版本评估环境障碍,并使用儿童生活质量量表(KIDSCREEN)父母版评估生活质量。相关分析结果显示,GMFCS分级、智商和学校类型与生活质量显著相关。障碍也与生活质量相关。一系列分层回归分析表明,在控制儿童和父母变量的影响后,家庭和学校中的障碍对生活质量有显著影响。这些发现强调了提供干预措施以产生有助于改善生活质量的环境变化的重要性。

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