Kumar Devina S, Perez Gabriel, Friel Kathleen M
Burke Neurological Institute, White Plains, NY 10605, USA.
Feil Family Brain & Mind Research Institute, Weill Cornell Medicine, New York, NY 10065, USA.
Brain Sci. 2023 Sep 8;13(9):1296. doi: 10.3390/brainsci13091296.
The goal of this narrative review is to highlight the healthcare challenges faced by adults with cerebral palsy, including the management of long-term motor deficits, difficulty finding clinicians with expertise in these long-term impairments, and scarcity of rehabilitation options. Additionally, this narrative review seeks to examine potential methods for maintaining functional independence, promoting social integration, and community participation. Although the brain lesion that causes the movement disorder is non-progressive, the neurodevelopmental disorder worsens from secondary complications of existing sensory, motor, and cognitive impairments. Therefore, maintaining the continuum of care across one's lifespan is of utmost importance. Advancements in healthcare services over the past decade have resulted in lower mortality rates and increased the average life expectancy of people with cerebral palsy. However, once they transition from adolescence to adulthood, limited federal and community resources, and health care professionals' lack of expertise present significant obstacles to achieving quality healthcare and long-term benefits. This paper highlights the common impairments seen in adults with cerebral palsy. Additionally, it underscores the critical role of long-term healthcare and management to prevent functional decline and enhance quality of life across physical, cognitive, and social domains.
本叙述性综述的目的是强调成年脑瘫患者所面临的医疗保健挑战，包括长期运动功能障碍的管理、难以找到具备处理这些长期损伤专业知识的临床医生，以及康复选择的稀缺。此外，本叙述性综述旨在探讨维持功能独立性、促进社会融合和社区参与的潜在方法。尽管导致运动障碍的脑部病变不会进展，但这种神经发育障碍会因现有感觉、运动和认知障碍的继发并发症而恶化。因此，在人的一生中维持连续的护理至关重要。过去十年医疗服务的进步降低了死亡率，并提高了脑瘫患者的平均预期寿命。然而，一旦他们从青少年过渡到成年，有限的联邦和社区资源以及医疗保健专业人员缺乏专业知识，对实现优质医疗保健和长期益处构成了重大障碍。本文重点介绍了成年脑瘫患者常见的损伤。此外，它强调了长期医疗保健和管理在预防功能衰退以及提高身体、认知和社会领域生活质量方面的关键作用。
