Ehlinger Virginie, Guernec Grégory, Perret Célia, Vidart Nicolas, Arnaud Catherine
CERPOP UMR 1295, Toulouse University, Inserm, University Toulouse III Paul Sabatier, Toulouse, France.
Clinical Epidemiology Unit, University Hospital, Toulouse, France.
Arch Rehabil Res Clin Transl. 2024 Dec 2;7(1):100411. doi: 10.1016/j.arrct.2024.100411. eCollection 2025 Mar.
To assess the correlation between the adequacy of the environment (the quantity of met individual environmental needs) and quality of life (QoL) in adolescents with cerebral palsy (CP) and to examine the magnitude of effects against personal and family factors.
Cross-sectional study.
Nine administrative regions in Denmark, France, Germany, Ireland, Italy, Sweden, and the United Kingdom.
Adolescents with confirmed diagnosis of CP, born 1991-1997, aged 13-17 years at the time of data collection. Nonwalkers (GMFCS IV-V) were overrepresented.
Not applicable.
Parent reports of the adequacy of the environment (using the European Child Environment Questionnaire) and their adolescent's QoL (using the Kidscreen-52 generic instrument, focusing on 4 domains: physical well-being, psychological well-being, autonomy, and school environment).
Six hundred sixty-four adolescents with CP participated in the study: 57.2% boys, mean age 15.1 years, 45.1% with GMFCS IV-V, and 45.7% attending mainstream schools. The adequacy of the environment was positively associated with QoL. More specifically, once adjusted for personal and family factors, positive correlations were observed between the adequacy of social support in the community and physical well-being, a supportive attitudinal environment from peers and psychological well-being, a supportive attitudinal environment from peers and teachers and satisfaction with school life, and the adequacy of physical environment at home and QoL in the autonomy domain, the latter only in the subgroup of those with GMFCS IV-V Among personal and family factors, impairments, pain, behavioral problems, or parenting stress correlated slightly higher with QoL than with the adequacy of the environment.
The adequacy of the environment relates to adolescent QoL. Personal and family factors correlated slightly higher with QoL than with environmental factors.
评估脑瘫（CP）青少年的环境适宜性（满足个体环境需求的程度）与生活质量（QoL）之间的相关性，并检验针对个人和家庭因素的影响程度。
横断面研究。
丹麦、法国、德国、爱尔兰、意大利、瑞典和英国的9个行政区。
确诊为CP的青少年，出生于1991 - 1997年，数据收集时年龄为13 - 17岁。非步行者（GMFCS IV - V级）占比过高。
不适用。
家长报告的环境适宜性（使用欧洲儿童环境问卷）及其青少年的生活质量（使用儿童生活质量量表 - 52通用工具，重点关注4个领域：身体健康、心理健康、自主性和学校环境）。
664名CP青少年参与了研究：57.2%为男孩，平均年龄15.1岁，45.1%为GMFCS IV - V级，45.7%就读于主流学校。环境适宜性与生活质量呈正相关。更具体地说，在对个人和家庭因素进行调整后，观察到社区社会支持的适宜性与身体健康之间、同伴的支持性态度环境与心理健康之间、同伴和教师的支持性态度环境与对学校生活的满意度之间，以及家庭物理环境的适宜性与自主性领域的生活质量之间存在正相关，后者仅在GMFCS IV - V级的亚组中存在。在个人和家庭因素中，损伤、疼痛、行为问题或养育压力与生活质量的相关性略高于与环境适宜性的相关性。
环境适宜性与青少年生活质量相关。个人和家庭因素与生活质量的相关性略高于与环境因素的相关性。
