Mellado Bruna H, Falcone Ananda C M, Poli-Neto Omero B, Rosa E Silva Julio C, Nogueira Antonio A, Candido-Dos-Reis Francisco J
Department of Gynecology and Obstetrics of Ribeirão Preto School of Medicine, University of São Paulo, Ribeirão Preto, Brazil.
Department of Gynecology and Obstetrics of Ribeirão Preto School of Medicine, University of São Paulo, Ribeirão Preto, Brazil.
Int J Gynaecol Obstet. 2016 May;133(2):199-201. doi: 10.1016/j.ijgo.2015.08.024. Epub 2016 Jan 6.
To evaluate the perceptions of women with endometriosis and chronic pelvic pain regarding their social ties.
A qualitative study was undertaken of women with chronic pelvic pain and endometriosis. Focus groups discussions among four to six participants were performed until saturation at the Clinics Hospital of Ribeirão Preto Medical School, Ribeirão Preto, southwest Brazil, between February 2013 and January 2014. Transcripts were analyzed according to the grounded theory approach and the emerging categories were coded using the WebQDA platform.
Six focus group discussions took place, with a total of 29 patients. Social isolation was the main emerging theme. Social isolation was associated with a lack of understanding about endometriosis symptoms and with resignation in face of recurrent pain episodes. Avoiding partner intimacy and isolation from family and friends were components of social isolation.
Women with endometriosis develop progressive social isolation after the onset of chronic pelvic pain. This finding is important for the multidisciplinary management of the disease.
评估患有子宫内膜异位症和慢性盆腔疼痛的女性对其社会关系的认知。
对患有慢性盆腔疼痛和子宫内膜异位症的女性进行了一项定性研究。2013年2月至2014年1月期间，在巴西西南部里贝朗普雷图医学院临床医院，对四至六名参与者进行了焦点小组讨论，直至达到饱和状态。根据扎根理论方法对转录本进行分析，并使用WebQDA平台对新出现的类别进行编码。
进行了六次焦点小组讨论，共有29名患者。社会孤立是主要出现的主题。社会孤立与对子宫内膜异位症症状缺乏了解以及面对反复疼痛发作时的听天由命有关。避免与伴侣亲密接触以及与家人和朋友隔离是社会孤立的组成部分。
患有子宫内膜异位症的女性在慢性盆腔疼痛发作后会逐渐出现社会孤立。这一发现对该疾病的多学科管理具有重要意义。
