父母在孕期超声检查中得知胎儿患致命性疾病的经历。
Parents' Experiences With Ultrasound During Pregnancy With a Lethal Fetal Diagnosis.
作者信息
Denney-Koelsch Erin M, Côté-Arsenault Denise, Lemcke-Berno Erin
机构信息
University of Rochester, Rochester, New York, USA.
The University of North Carolina at Greensboro, Greensboro, North Carolina, USA.
出版信息
Glob Qual Nurs Res. 2015 Jan-Dec;2. doi: 10.1177/2333393615587888. Epub 2015 Jun 1.
This longitudinal naturalistic study sought to describe parent experiences of ultrasounds during pregnancies with lethal fetal diagnoses (LFDs). We interviewed 16 mothers and 14 partners twice during pregnancy and twice after birth and death of their infant. Parents reported that ultrasound providers had a profound impact on their experiences with LFDs. Within three stages of pregnancy (pre-diagnosis, learning the diagnosis, and living with the diagnosis), themes of , and emerged. The dynamics of interactions with ultrasound providers included , and . These interactions were either satisfying or added to parents' burden. Ultrasound providers have the opportunity to share valuable knowledge and facilitate understanding and precious time with the baby. Providers of obstetrical care can improve communication with parents with LFDs at critical time periods by matching their interaction to parents' needs.
这项纵向自然主义研究旨在描述孕妇在胎儿致死性诊断（LFD）期间进行超声检查时父母的经历。我们在孕妇孕期以及其婴儿出生和死亡后对16位母亲和14位伴侣进行了两次访谈。父母们报告称，超声检查提供者对他们面对LFD的经历产生了深远影响。在孕期的三个阶段（诊断前、得知诊断以及带着诊断生活），出现了……、……和……的主题。与超声检查提供者互动的动态情况包括……、……和……。这些互动要么令人满意，要么加重了父母的负担。超声检查提供者有机会分享宝贵的知识，并促进与婴儿共度的理解和珍贵时光。产科护理提供者可以通过使互动与父母的需求相匹配，在关键时期改善与患有LFD的父母的沟通。
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