Division of Gastroenterology, Hepatology & Nutrition, Children's Hospital of Eastern Ontario, Ottawa, Canada.
Inflamm Bowel Dis. 2012 Jun;18(6):1156-63. doi: 10.1002/ibd.22834. Epub 2011 Dec 6.
Patients with inflammatory bowel disease (IBD) are increasingly turning to the Internet to research their condition and engage in discourse on their experiences. This has resulted in new dynamics in the relationship between providers and their patients, with misinformation and advertising potentially presenting barriers to the cooperative patient-provider partnership. This article addresses important issues of online IBD-related health information and social media activity, such as quality, reliability, objectivity, and privacy. We reviewed the medical literature on the quality of online information provided to IBD patients, and summarized the most commonly accessed Websites related to IBD. We also assessed the activity on popular social media sites (such as Facebook, Twitter, and YouTube), and evaluated currently available applications for use by IBD patients and providers on mobile phones and tablets. Through our review of the literature and currently available resources, we developed a list of recommended online resources to strengthen patient participation in their care by providing reliable, comprehensive educational material.
炎症性肠病(IBD)患者越来越多地利用互联网研究自己的病情,并在网上交流自己的经历。这导致了医患关系的新变化,错误信息和广告可能成为合作型医患关系的障碍。本文介绍了与 IBD 相关的在线健康信息和社交媒体活动的重要问题,例如质量、可靠性、客观性和隐私。我们回顾了关于向 IBD 患者提供的在线信息质量的医学文献,并总结了与 IBD 最常相关的网站。我们还评估了热门社交媒体网站(如 Facebook、Twitter 和 YouTube)上的活动,并评估了目前可用于移动设备和平板电脑的 IBD 患者和提供者的应用程序。通过对文献和现有资源的回顾,我们列出了一系列推荐的在线资源,通过提供可靠、全面的教育材料来加强患者对自身护理的参与。